Advancing discussion of ethics in mixed methods health services research.

Advancing discussion of ethics in mixed methods health services research.
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DOI:
10.1186/s12913-021-06583-1
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发表时间:
2021-06-15
影响因子:
2.8
通讯作者:
Gallo JJ
Gallo JJ
中科院分区:
医学3区
文献类型:
--
作者:
Stadnick NA;Poth CN;Guetterman TC;Gallo JJ

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描述科学家进行混合方法卫生服务研究的伦理问题和经验,并推进关于混合方法卫生研究中伦理完整性的实证和概念性讨论。这项研究是由国立卫生研究院资助的健康科学混合方法研究培训项目的学者、教师和顾问进行的。这是一项横断面研究。调查结果用描述性统计来描述回答,用开放编码来总结关于八个伦理混合方法研究问题的策略。受访者完成了一项在线调查,以获取与八个道德问题(知情同意、保密、数据管理、负担、安全、公平招聘、沟通和传播)以及解决这些问题的战略有关的经验。只有大约三分之一的受访者认为他们的研究伦理培训帮助他们计划、进行或报告混合方法研究。最常见的道德问题是参与者负担、传播和公平招聘(> 70%认可)。尽管经常发生,< 仍有50%的受访者认为每个道德问题都具有挑战性。最具挑战性的伦理问题与管理参与者负担、沟通和传播有关。除减轻参与者负担和在较小程度上促进公平招聘和促进项目成果传播的战略外,报告的解决道德问题的战略在很大程度上并不是混合方法所特有或独有的。混合方法健康研究人员报告说,在用于缓解伦理问题的策略中,经常遇到伦理问题,但难度和有效性程度各不相同。这项研究突出了混合方法研究人员在规划和适当应对出现的伦理问题时面临的一些独特挑战,例如管理参与者的负担和跨数据来源的机密性,以及利用有效的沟通和传播战略,特别是在与多学科研究团队合作时。作为检验混合方法研究伦理的首批实证研究之一,我们的发现强调了在卫生服务混合方法研究和培训中更多关注伦理的必要性。网上版载有补充材料,可在10.1186/s12913-021-06583-1查阅。
To describe the ethical issues and experiences of scientists conducting mixed methods health services research and to advance empirical and conceptual discussion on ethical integrity in mixed methods health research. The study was conducted with 64 scholars, faculty and consultants from the NIH-funded Mixed Methods Research Training Program (MMRTP) for the Health Sciences. This was a cross-sectional study. Survey results were analyzed using descriptive statistics to characterize responses and open coding to summarize strategies about eight ethical mixed methods research issues. Respondents completed an online survey to elicit experiences related to eight ethical issues (informed consent, confidentiality, data management, burden, safety, equitable recruitment, communication, and dissemination) and strategies for addressing them. Only about one-third of respondents thought their research ethics training helped them plan, conduct, or report mixed methods research. The most frequently occurring ethical issues were participant burden, dissemination and equitable recruitment (> 70% endorsement). Despite occurring frequently, < 50% of respondents rated each ethical issue as challenging. The most challenging ethical issues were related to managing participant burden, communication, and dissemination. Strategies reported to address ethical issues were largely not specific or unique to mixed methods with the exception of strategies to mitigate participant burden and, to a lesser degree, to facilitate equitable recruitment and promote dissemination of project results. Mixed methods health researchers reported encountering ethical issues often yet varying levels of difficulty and effectiveness in the strategies used to mitigate ethical issues. This study highlights some of the unique challenges faced by mixed methods researchers to plan for and appropriately respond to arising ethical issues such as managing participant burden and confidentiality across data sources and utilizing effective communication and dissemination strategies particularly when working with a multidisciplinary research team. As one of the first empirical studies to examine mixed methods research ethics, our findings highlight the need for greater attention to ethics in health services mixed methods research and training. The online version contains supplementary material available at 10.1186/s12913-021-06583-1.
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