Factors associated with quality of life among mothers of children with cerebral palsy
Factors associated with quality of life among mothers of children with cerebral palsy
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DOI：
10.1111/ijn.12811
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发表时间：
2020-06-01
影响因子：
1.9
通讯作者：
Amini, Malek
中科院分区：
文献类型：
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作者：
Farajzadeh, Ata;Maroufizadeh, Saman;Amini, Malek
目的探讨影响脑瘫患者母亲生活质量的因素。方法采用方便抽样方法，对203例脑瘫患儿母亲进行横断面调查。对这些照顾者进行世界卫生组织生活质量问卷（WHOQOL-BREF）、贝克抑郁量表、照顾者困难量表、疲劳严重程度量表和人口统计信息问卷调查。采用层次多元线性回归分析检测影响生活质量的因素。结果WHOQOL-BREF各域与其他指标呈中至高度显著负相关。控制人口学/临床变量，进行分层多元线性回归分析。结果表明，抑郁、照顾负担、疲劳程度和脑瘫类型对母亲的生活质量有显著影响。四肢瘫痪患儿母亲的生活质量低于其他类型残疾患儿母亲（P < 0.05）。结论脑瘫患儿母亲的生活质量受到照顾负担、疲劳、心理症状等多种因素的负面影响。因此，需要一个整体的方法，包括训练（携带，定位，喂养，以及如何管理儿童的自我照顾）和心理干预，以提高这一人群的生活质量。关于这个主题我们已经知道了什么？与发达国家不同，发展中国家对脑瘫患者的护理人员进行了一些研究。发展中国家缺乏任何支持系统，导致大部分护理负担落在了护理人员的肩上。这篇文章补充了什么？研究表明，母亲的照顾负担会导致抑郁、压力等心理症状，并导致生活质量下降。本文的意义：考虑到脑瘫的慢性性和护理者可能提供长期护理，需要采取干预措施以减轻护理负担和心理症状，提高生活质量。脑瘫严重程度与护理负担之间的显著关系表明，特殊培训包可以有针对性地减轻身体、情感和经济上的护理负担。
AimTo identify the factors pertaining to the quality of life (QOL) among the mothers of patients with cerebral palsy.MethodsIn this cross-sectional study, 203 mothers of children with cerebral palsy were selected using convenience sampling. The World Health Organization's Quality of Life Questionnaire (WHOQOL-BREF), the Beck Depression Inventory, the Caregiver Difficulties Scale, Fatigue Severity Scale, and a demographic information questionnaire were administered to these caregivers. Hierarchical multiple linear regression analysis was used to detect the factors associated with QOL.ResultsModerate to high significant negative correlations were observed between all WHOQOL-BREF domains and the other measures. The demographic/clinical variables were controlled, and hierarchical multiple linear regression analysis was run. The results indicated that depression, the burden of care, fatigue, and the type of cerebral palsy could significantly predict QOL in these mothers. Furthermore, QOL was lower in the mothers of children with tetraplegia than those of children with other types of disabilities (P < .05).ConclusionQOL of mothers of children with cerebral palsy is negatively impacted by various factors such as burden of care, fatigue, and psychological symptoms. Thus, a holistic approach, including training (carrying, positioning, feeding, and how to manage the self-care of children) and psychological interventions, is required to improve QOL among this population.SUMMARY STATEMENT What is already known about this topic? Unlike developed countries, there are a few studies conducted on caregivers of patients with cerebral palsy in developing counties. The lack of any supporting systems in developing countries caused most of the burden of care to be on the shoulders of caregivers.What this paper adds?This paper showed that the burden of care of mothers caused psychological symptoms such as depression, stress, and decrease in QOL.The implications of this paper: Considering the chronicity of cerebral palsy and that caregivers may provide care long-term, interventions are needed in order to decrease the burden of care and psychological symptoms and enhance QOL. The significant relationship between severity of cerebral palsy and burden of care indicates special training packages could be targeted to decrease the burden of care, physically, emotionally, and financially.