Understanding Users Information Needs and Collaborative Sensemaking of Microbiome Data
Understanding Users Information Needs and Collaborative Sensemaking of Microbiome Data
复制标题
了解用户信息需求和微生物组数据的协作意义构建
DOI:
10.1145/3274470
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发表时间:
2019
影响因子:
--
通讯作者:
Ball, Mad Price
中科院分区:
文献类型:
--
作者:
Otiono, Jennifer;Olaosebikan, Monsurat;Shaer, Orit;Nov, Oded;Ball, Mad Price
Recent years are seeing a sharp increase in the availability of personal omic (e.g. genomes, microbiomes) data to non-experts through direct-to-consumer testing kits. While the scientific understanding of human -omic information is evolving, the interpretation of the data may impact well-being of users and relevant others, and therefore poses challenges and opportunities for CSCW research. We identify the information, interaction, and sense-making needs of microbiomic data users, within the broader context of social omics - the sharing and collaborative engagement with data and interpretation. Analyzing users' discussions on Reddit's r/HumanMicrobiome, we identified seven user needs for microbiome data: reviewing an annotated report, comparing microbiome data, tracking changes, receiving personalized actionable information, curating and securing information, documenting and sharing self experiments, and enhancing the communication between patients and health-care providers. We highlight the ways in which users interact with each other to collaboratively make sense of the data. We conclude with design implications, including tools for better communication with care providers, and for symptom-centered sharing and discussion.
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DOI:
10.1007/978-3-319-58515-4_37
发表时间:
2017
期刊:
Proceedings of the 19th ACM Conference on Computer-Supported Cooperative Work & Social Computing
影响因子:
--
作者:
S. Yoo;Jonatan Lemos;E. Finn
通讯作者:
E. Finn
影响因子:
3.7
作者:
Robillard JM;Johnson TW;Hennessey C;Beattie BL;Illes J
通讯作者:
Illes J
DOI:
--
发表时间:
2019
期刊:
影响因子:
--
作者:
michel
通讯作者:
michel
DOI:
--
发表时间:
2008-11
期刊:
AMIA ... Annual Symposium proceedings. AMIA Symposium
影响因子:
--
作者:
Catherine Arnott-Smith;P. Wicks
通讯作者:
Catherine Arnott-Smith;P. Wicks
DOI:
10.1145/3136273.3136622
发表时间:
2017
期刊:
Proceedings of the 8th Balkan Conference in Informatics
影响因子:
--
作者:
G. Banavar;R. Basseda;Matteo Rinaldi
通讯作者:
Matteo Rinaldi