Breast cancer survivors accurately reported key treatment and prognostic characteristics
Breast cancer survivors accurately reported key treatment and prognostic characteristics
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DOI：
10.1016/j.jclinepi.2004.09.005
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发表时间：
2005-04-01
影响因子：
7.2
通讯作者：
Robert, J
中科院分区：
文献类型：
--
作者：
Maunsell, E;Drolet, M;Robert, J
背景与目的：医疗记录被认为是癌症治疗和预后信息的金标准。我们比较了幸存者自我报告和医疗记录在关键治疗和预后特征上的一致性。研究设计和背景：在魁北克进行了一项基于人群的研究，评估诊断时年龄< 60岁的乳腺癌幸存者的工作经验。数据来自诊断后3.4 +/- 0.2年的一次电话访谈。646名参与者中有103人的医疗记录数据可用。结果：治疗（乳房手术、乳房切除术、腋窝清扫、放疗、化疗、激素治疗、重建、骨髓移植）的自我报告与病历资料的一致性很高。Kappa值从腋窝解剖的0.89到乳房手术的1.00不等。浸润淋巴结数（0,1 -3,>= 4，未知）Kappa值略低（0.85），但仍然很好。当接受+/- 1个月的医疗记录日期的答案时，>= 89%的女性正确报告了不同的治疗日期。结论：这些结果为乳腺癌幸存者在诊断后3年报告的总结治疗和预后数据的有效性提供了证据。当医疗记录不可行时，幸存者可能准确地描述治疗轨迹和关键预后信息。这些发现可能需要在老年妇女中重复。(c) 2005爱思唯尔公司版权所有。
Background and Objective: Medical records are considered the gold standard for information on cancer treatments and prognosis. We compared survivor self-report and medical records for agreement on key treatment and prognostic characteristics.Study Design and Setting: A population-based study was conducted in Quebec assessing work experience among breast cancer survivors aged < 60 years at diagnosis. Data came from a single telephone interview 3.4 +/- 0.2 years after diagnosis. Medical record data were available for 103 out of 646 participants.Results: Agreement of self-report with medical record data was very high for treatments (breast surgery, type of mastectomy, axillary dissection, radiotherapy, chemotherapy, hormone therapy, reconstruction, bone marrow transplantation). Kappa values varied from 0.89 for axillary dissection to 1.00 for breast surgery. Kappa values for number of invaded nodes (0, 1-3, >= 4, unknown) was slightly lower (0.85) but was still excellent. When accepting answers +/- I month of the medical record date, >= 89% of women correctly reported different treatment dates.Conclusion: These results provide evidence of the validity of summary treatment and prognostic data reported by breast cancer survivors 3 years after diagnosis. Survivors can likely accurately describe the treatment trajectory and key prognostic information when medical record review is unfeasible. These findings may need replication among older women. (c) 2005 Elsevier Inc. All rights reserved.