The role of health literacy on African American and Hispanic/Latino perspectives on cancer clinical trials.
The role of health literacy on African American and Hispanic/Latino perspectives on cancer clinical trials.
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DOI：
10.1007/s13187-011-0300-5
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发表时间：
2012-06
影响因子：
1.6
通讯作者：
Hudson, Shawna V.
中科院分区：
文献类型：
--
作者：
Evans, Kiameesha R.;Lewis, M. Jane;Hudson, Shawna V.
尽管癌症临床试验对于发现挽救生命的疗法很重要，但少数种族/族裔的参与程度仍然很低，而且很少有研究探讨健康素养在少数种族/族裔对癌症临床试验的看法中的作用。由非裔美国人和西班牙裔参与者组成的五个焦点小组（n= 50）利用多维健康素养框架探讨了有条件现金转移支付的认知。我们发现科学素养低下，包括对科学信息的误解，对临床试验的不确定性和恐惧的看法；公民对信任、参与者作为小白鼠的认知以及对IRB保护的担忧等主题的理解有限；文化素养方面的挑战涉及家庭保健疗法的重要性、母语的使用以及种族/族裔与卫生保健专业人员匹配的重要性。结果突出了重视科学素养、文化素养和公民素养的重要性。未来关于癌症临床试验的教育干预应强调健康素养在理解癌症临床试验决策中的重要性。
Although cancer clinical trials are important for discovering lifesaving therapies, participation remains low among racial/ethnic minorities, and little research explores the role of health literacy in racial/ethnic minority perceptions of cancer clinical trials (CCTs). Five focus groups (n= 50) with African American and Hispanic participants explored CCT perceptions using a multidimensional health literacy framework. We found poor scientific literacy including misconceptions of scientific information, perceptions of clinical trials as uncertain and fear; limited civic literacy around topics of trust, perceptions of participants as guinea pigs, and concerns about of IRB protections; and cultural literacy challenges regarding the importance of home remedies for health, use of native language, and the importance of race/ethnicity matching to health care professionals. Results highlight the importance of attending to scientific literacy, cultural literacy, and civic literacy. Future educational interventions regarding cancer clinical trials should address the importance of health literacy in understanding cancer clinical trial decision making.
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