MS and me: exploring the impact of multiple sclerosis on perceptions of self
MS and me: exploring the impact of multiple sclerosis on perceptions of self
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DOI：
10.3109/09638288.2011.638032
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发表时间：
2012-01-01
影响因子：
2.2
通讯作者：
Boot, Julia
中科院分区：
文献类型：
--
作者：
Mozo-Dutton, Louise;Simpson, Jane;Boot, Julia
目的：这项定性研究的目的是探索多发性硬化症(MS)对自我知觉的影响，以及任何自我报告的变化对情绪、社会和实践的影响。方法：对12名受试者进行访谈，采用解释现象学分析方法对数据进行分析。参与者从英格兰西北部的一家多发性硬化症医院的诊所招募。结果：确定了四个主题，尽管出于空间和新颖性的原因，讨论了三个主题：(I)我的身体不属于我：与身体的变化关系；(Ii)我怀念我对自己感觉的方式：与自我的变化关系；(Iii)让我们试着与它相处：整合但将MS与自我分开。结论：多发性硬化症的发病被认为是对自我的影响，但影响并不一定等同于自我的丧失，而是一种改变的自我。然而，自我相关的变化确实有可能对一个人的情绪和心理功能产生负面影响，因此，临床医生被鼓励将与自我相关的问题视为标准。
Purpose: The aim of this qualitative study was to explore the impact of multiple sclerosis (MS) on perceptions of self as well as the emotional, social and practical implications of any self-reported changes. Method: Twelve participants were interviewed and interpretative phenomenological analysis used to analyse the data. Participants were recruited from a MS hospital clinic in the north-west of England. Results: Four themes were identified although for reasons of space and novelty three were discussed, (i) 'my body didn't belong to me': the changing relationship to body, (ii) 'I miss the way I feel about myself': the changing relationship to self and (iii) 'let's just try and live with it': incorporating yet separating MS from self. Conclusions: The onset of MS was seen to impact upon self yet impact did not necessarily equate with a loss of self but rather a changed self. Self-related changes did, however, carry the potential to impact negatively upon a person's mood and psychological functioning and consequently, clinicians are encouraged to consider issues relating to self as standard.