Bereavement care for ethnic minority communities: A systematic review of access to, models of, outcomes from, and satisfaction with, service provision.

Bereavement care for ethnic minority communities: A systematic review of access to, models of, outcomes from, and satisfaction with, service provision.
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DOI:
10.1371/journal.pone.0252188
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发表时间:
2021
期刊:
影响因子:
3.7
通讯作者:
Allsop MJ
Allsop MJ
中科院分区:
综合性期刊3区
文献类型:
--
作者:
Mayland CR;Powell RA;Clarke GC;Ebenso B;Allsop MJ

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审查和综合关于联合王国内少数族裔社区丧亲护理的现有证据,包括获得障碍和促进者;护理模式;提供服务的结果和满意度。采用框架综合法对其进行了系统评价。通过EBSCO、Global Health、Cochrane图书馆、Trip数据库和ProQuest对1995-2020年间的文献进行了电子检索,检索词为MEDLINE、Embase、QicINFO、Social Work Abstract和CINAHL。搜索关键词包括丧亲关怀、少数民族人口和英国背景。从3185份初始记录中,经过资格筛选和对164篇文章的全文审查,确定了7项研究。没有研究文献概述家庭、朋友和现有网络的作用;也确实缺乏关于接受丧亲护理的少数族裔背景的人的结果和满意度的证据。从有限的文献来看,丧亲护理障碍的首要主题是“不熟悉和不规范”。确定的四个分主题是:“缺乏认识”;“支持的可变性”;“支持的类型和形式”;以及“特定的文化信仰”。亲属丧亡之痛护理促进者的首要主题是“无障碍”,两个分主题是“随时可获得的信息”和“包容性办法”。三项研究报告了不同护理提供模式的实例。这项审查揭示了明显缺乏关于少数民族人口丧亲护理的证据。特别是,更多地了解家庭、朋友和现有支助系统的作用,以及成果和满意度,将开始发展支撑当前规定的证据基础。通过主动参与和共同设计办法直接代表用户,可以开始确定少数民族社区丧亲关怀的最适当模式和形式,以便为服务设计和提供提供信息。
To review and synthesize the existing evidence on bereavement care, within the United Kingdom (UK), for ethnic minority communities in terms of barriers and facilitators to access; models of care; outcomes from, and satisfaction with, service provision. A systematic review adopting a framework synthesis approach was conducted. An electronic search of the literature was undertaken in MEDLINE, Embase, PsycINFO, Social Work Abstract and CINAHL via EBSCO, Global Health, Cochrane library, the Trip database and ProQuest between 1995 and 2020. Search terms included bereavement care, ethnic minority populations and the UK setting. From 3,185 initial records, following screening for eligibility, and full-text review of 164 articles, seven studies were identified. There was no research literature outlining the role of family, friends and existing networks; and a real absence of evidence about outcomes and levels of satisfaction for those from an ethnic minority background who receive bereavement care. From the limited literature, the overarching theme for barriers to bereavement care was ‘unfamiliarity and irregularities’. Four identified subthemes were ‘lack of awareness’; ‘variability in support’; ‘type and format of support’; and ‘culturally specific beliefs’. The overarching theme for facilitators for bereavement care was ‘accessibility’ with the two subthemes being ‘readily available information’ and ‘inclusive approaches’. Three studies reported on examples of different models of care provision. This review reveals a stark lack of evidence about bereavement care for ethnic minority populations. In particular, understanding more about the role of family, friends and existing support systems, alongside outcomes and satisfaction will begin to develop the evidence base underpinning current provision. Direct user-representation through proactive engagement and co-design approaches may begin to determine the most appropriate models and format of bereavement care for ethnic minority communities to inform service design and delivery.
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