Life Process Developed by Siblings of Individuals with Autistic Spectrum Disorders
Life Process Developed by Siblings of Individuals with Autistic Spectrum Disorders
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自闭症谱系障碍患者的兄弟姐妹开发的生命过程
DOI：
10.5630/jans.34.301
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发表时间：
2014
期刊：
影响因子：
--
通讯作者：
A. Kawakami
中科院分区：
文献类型：
--
作者：
A. Kawakami
目的：本研究旨在了解患有自闭症谱系障碍（ASD）的兄弟姐妹如何发展他们的生活过程。方法：基于扎根理论方法进行连续比较分析。结果：研究参与者是 10 名年龄在 12 岁至 22 岁之间的兄弟姐妹。研究发现，兄弟姐妹创造的生命过程由以下概念组成：与他人接触以保护患有自闭症谱系障碍的兄弟姐妹；与兄弟姐妹互动，与他们的自闭症经历保持距离；对自己存在的不确定性；为父母考虑；他们对自己未来生活的思考与患有自闭症谱系障碍的兄弟姐妹的思考密不可分。分析确定了保护的首要概念。讨论：发现参与者接近他人是为了保护患有自闭症谱系障碍的兄弟姐妹，同时继续与他们互动，与他们的自闭症经历保持距离，并体贴他们的父母。他们通过对生命和存在的保护感来经历对自己的存在和生命过程的不确定性，并认为自己的未来生活与患有自闭症谱系障碍的兄弟姐妹的生活密不可分，从而成长。
Purpose: is study is to nd out how the siblings who live with autistic spectrum disorder individuals(ASD)develop their life process. Methods: Continuous comparative analysis based on the Grounded eory Approach was undertaken. Results: Study participants were 10 siblings aged between 12 and 22 years. e life process created by the siblings were found to be composed of the following concepts: approach to others in order to protect their siblings with ASD; interaction with siblings by keeping a distance from their autistic experiences; uncertainty about their own existence; consideration for parents; thoughts for their own future life inseparable from that of their siblings with ASD. e overriding concept of protection was identi ed by the analysis. Discussion: Participants were found to approach others so as to protect their siblings with ASD while continuing to interact with them by keeping a distance from their autistic experiences and to show consideration for their parents. ey grow up by experiencing uncertainty about their own existence and their life process through a sense of protection for life and existence, considering their own future life as being inseparable from that of their siblings with ASD.