Biogovernance Beyond the State: The Shaping of Stem Cell Therapy by Patient Organizations in India.
Biogovernance Beyond the State: The Shaping of Stem Cell Therapy by Patient Organizations in India.
复制标题
超越国家的生物治理：印度患者组织对干细胞治疗的塑造。
DOI：
10.1080/01459740.2016.1264945
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发表时间：
2017
影响因子：
2.3
通讯作者：
Heitmeyer C
中科院分区：
文献类型：
--
作者：
Heitmeyer C
在印度，通过政府赞助的“公众咨询”参与生物医学创新，特别是干细胞研究和治疗，相对有限。然而，患者团体正在利用与医疗从业人员的合作，以促进生物医学研究和患者可以获得实验性治疗的条件。基于2012年至2015年期间进行的定性实地调查，我研究了两个患者群体在目前缺乏具有法律约束力的研究指南的情况下，如何围绕如何规范实验性干细胞治疗进行辩论的方式。这种参与过程可以被视为生物医学治理的另一种形式，它响应了印度患者的优先事项和紧急情况，与印度政府目前采取的措施形成鲜明对比，这些措施主要针对全球科学和企业界。
Public engagement through government-sponsored “public consultations” in biomedical innovation, specifically stem cell research and therapy, has been relatively limited in India. However, patient groups are drawing upon collaborations with medical practitioners to gain leverage in promoting biomedical research and the conditions under which patients can access experimental treatments. Based on qualitative fieldwork conducted between 2012 and 2015, I examine the ways in which two patient groups engaged with debates around how experimental stem cell therapy should be regulated, given the current lack of legally binding research guidelines. Such processes of engagement can be seen as an alternative form of biomedical governance which responds to the priorities and exigencies of Indian patients, contrasting with the current measures taken by the Indian state which, instead, are primarily directed at the global scientific and corporate world.