Social support in cyberspace: A content analysis of communication within a Huntington's disease online support group
Social support in cyberspace: A content analysis of communication within a Huntington's disease online support group
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DOI：
10.1016/j.pec.2007.06.002
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发表时间：
2007-10-01
影响因子：
3.5
通讯作者：
Aubeeluck, Aimee
中科院分区：
文献类型：
--
作者：
Coulson, Neil S.;Buchanan, Heather;Aubeeluck, Aimee
目的：亨廷顿病（Huntington 'sdisease，HD）是一种以进行性脑变性为特征的遗传性疾病。由于症状的性质，疾病的遗传因素，以及无法治愈的事实，HD患者及其支持网络中的人经常经历相当大的压力和焦虑。随着互联网接入的扩大，受HD影响的个人有了新的信息检索和社会支持的机会。本研究的目的是探讨提供社会支持的信息张贴到HD在线支持小组bulletinboard.Methods：在总的1313消息进行了内容分析，使用修改后的版本的社会支持行为代码开发的[Cutrona CE，苏尔J。可控性的压力事件和满意度与配偶的支持行为。Commun Res 1992; 19：154 - 74]。分析表明，小组成员最经常提供信息，（56.2%）和情感支持（51.9%）其次是网络支持（48.4%）得到尊重支持（21.7%）和有形援助（9.8%）最不经常提供。结论：本研究表明，交换信息和情感支持是这个在线群体的一个关键功能。实践启示：在线支持小组为卫生专业人员提供了一个独特的机会，以了解受HD影响的个人的经验和观点，并探索循证医学与消费者行为和期望之间可能存在的差距以及原因。(C)2007爱思唯尔爱尔兰有限公司保留所有权利。
Objective: Huntington's disease (HD) is an inherited disorder, characterized by a progressive degeneration of the brain. Due to the nature of the symptoms, the genetic element of the disease, and the fact that there is no cure, HD patients and those in their support network often experience considerable stress and anxiety. With an expansion in Internet access, individuals affected by HD have new opportunities for information retrieval and social support. The aim of this study is to examine the provision of social support in messages posted to a HD online support group bulletin board.Methods: In total, 1313 messages were content analyzed using a modified version of the social support behavior code developed by [Cutrona CE, Suhr J. Controllability of stressful events and satisfaction with spouse support behaviors. Commun Res 1992;19:154-74].Results: The analysis indicates that group members most frequently offered informational (56.2%) and emotional support (51.9%) followed by network support (48.4%) with esteem support (21.7%), and tangible assistance (9.8%) least frequently offered.Conclusion: This study suggests that exchanging informational and emotional support represents a key function of this online group.Practice implications: Online support groups provide a unique opportunity for health professionals to learn about the experiences and views of individuals affected by HD and explore where and why gaps may exist between evidence-based medicine and consumer behavior and expectations. (C) 2007 Elsevier Ireland Ltd. All rights reserved.