Project HealthDesign: Rethinking the power and potential of personal health records
Project HealthDesign: Rethinking the power and potential of personal health records
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DOI：
10.1016/j.jbi.2010.09.001
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发表时间：
2010-10-01
影响因子：
4.5
通讯作者：
Casper, Gail
中科院分区：
文献类型：
--
作者：
Brennan, Patricia Flatley;Downs, Stephen;Casper, Gail
健康设计项目是一个由罗伯特·伍德约翰逊基金会赞助的多年期、多地点项目，并得到了加州医疗保健基金会的额外支持，旨在激励个人健康记录（PHR）的创新。项目健康设计团队采用以用户为中心的设计流程，创建基于计算机的应用程序的设计和原型，以支持和增强各种患者的人类健康，从患有慢性疾病的儿童到从医院过渡到家庭的老年人。程序设计理念鼓励设计人员将PHR设想为一套个人健康信息管理工具或应用程序，与来自各种来源的个人健康数据分开，但利用这些数据。除了医疗记录中包含的信息外，这些个人健康数据还包括患者提供的临床参数，如血糖和每日体重;以及患者生成的日常生活观察（ODL）-独特的特殊提示，如睡眠充足或自我护理的信心，告知患者他们管理健康挑战和采取健康行动的能力。一个共同的技术平台提供了数据标准和身份管理协议等基础设施服务，并帮助展示了以用户为中心设计个人健康信息管理系统的可扩展、高效的方法。该计划的伦理，法律的和社会问题咨询确定了加速以行动为重点的PHR的挑战：个人控制隐私选择，家庭条件下的隐私管理，以及在共同决策中重新平衡权力结构。(C)2010年爱思唯尔公司All rights reserved.
Project HealthDesign, a multi-year, multi-site project sponsored by the Robert Wood Johnson Foundation with additional support from the California HealthCare Foundation, is designed to stimulate innovation in personal health records (PHRs). Project HealthDesign teams employed user-centered design processes to create designs and prototypes of computer-based applications to support and enhance human health for a wide range of patients, from children with chronic health conditions to elders transitioning from hospital to home. A program design philosophy encouraged designers to envision PHRs as a suite of personal health information management tools, or applications, separate from, but drawing upon, personal health data from a variety of sources. In addition to information contained in one's medical record, these personal health data included patient-supplied clinical parameters such as blood glucose and daily weights; as well as patient-generated observations of daily living (ODLs) - the unique, idiosyncratic cues, such as sleep adequacy or confidence in self care, that inform patients about their abilities to manage health challenges and take healthy action. A common technical platform provided infrastructure services such as data standards and identity-management protocols, and helped to demonstrate a scalable, efficient approach to user-centered design of personal health information management systems. The program's ethical, legal and social issues consultancy identified challenges to acceleration of action-focused PHRs: personal control of privacy choices, management of privacy in home conditions, and rebalancing power structures in shared decision making. (C) 2010 Elsevier Inc. All rights reserved.