Conceptualizing caregiving activities for persons with dementia (PwD) through a patient work lens
Conceptualizing caregiving activities for persons with dementia (PwD) through a patient work lens
复制标题
通过患者工作视角构思痴呆症患者 (PwD) 的护理活动
DOI：
10.1016/j.apergo.2020.103070
复制
发表时间：
2020
影响因子：
3.2
通讯作者：
Werner, Nicole E.
中科院分区：
文献类型：
--
作者：
Ponnala, Siddarth;Block, Laura;Lingg, Aloysius J.;Kind, Amy J.;Werner, Nicole E.
非正式护理人员是为痴呆症患者提供护理的一个组成部分。非正规照顾者单独或与其他照顾者合作参加各种各样的照顾活动。照顾往往涉及在有限的资源面前的高要求，这可能导致压力，负担和倦怠。为了支持照顾者，我们需要概念化他们执行的活动，以及他们执行工作的网络和角色。我们进行了定向内容分析的访谈数据，从20个照顾者，并采用人为因素的方法来表征非正式的照顾工作。我们的研究结果揭示了：1）组织角色的细微差别，2）组织网络的差异，3）13类组织活动，其特征是时间承诺;身体，认知和社会行为需求;以及不同的网络依赖性。这些发现可以应用于未来的研究，以评估网络的需求，以及如何更好地支持他们。
Informal caregivers are an integral part of care delivery for persons with dementia (PwD). Informal caregivers take part in a wide range of care activities both individually and collaboratively with other caregivers. Caregiving often involves high demands in the face of limited resources, which can lead to stress, burden, and burnout. To support caregivers, we need to conceptualize caregiving activities they perform, and the networks and roles through which they perform work. We performed a directed content analysis on interview data from twenty caregivers and applied a human factors approach to characterize informal caregiving work. Our results revealed 1) nuances in caregiving roles, 2) differences in caregiving networks, and 3) 13 categories of caregiving activities characterized by time commitments; physical, cognitive and socio-behavioral demands; and varying network dependencies. These findings can be applied in future studies to evaluate the needs of caregiving networks and how to better support them.