Fostering Ethical, Legal, and Social Implications Research in Tribal Communities: The Center for the Ethics of Indigenous Genomic Research
Fostering Ethical, Legal, and Social Implications Research in Tribal Communities: The Center for the Ethics of Indigenous Genomic Research
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DOI：
10.1177/1556264619872640
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发表时间：
2019-09-09
影响因子：
1.3
通讯作者：
Spicer, Paul G.
中科院分区：
文献类型：
--
作者：
Hiratsuka, Vanessa Y.;Beans, Julie A.;Spicer, Paul G.
基因组研究引起了阿拉斯加原住民和美洲印第安人 (AN/AI) 及其社区独特的伦理问题。土著基因组研究伦理中心 (CEIGR) 的成立是为了促进在考虑 AN/AI 部落国家主权地位的同时考虑到这些问题的研究。 CEIGR 内部建立的关系使得来自不同文化、政治和历史背景以及学科的个人以及为具有不同资源、能力和期望的组织工作的个人之间能够进行有效的协作研究。 CEIGR 框架可以为其他寻求与部落人民及其社区进行与基因组研究相关的社会科学研究的团体提供信息。
Genomic research raises unique ethical concerns among Alaska Native and American Indian (AN/AI) people and their communities. The Center for the Ethics of Indigenous Genomic Research (CEIGR) was created to foster research that takes these concerns into account while considering the sovereign status of AN/AI tribal nations. Relationships developed within CEIGR have allowed for effective, collaborative research among individuals who come from diverse cultures, political and historical backgrounds, and academic disciplines, and who work for organizations with varying resources, capacities, and expectations. The CEIGR framework may inform other groups seeking to conduct social science research related to genomic research with tribal people and their communities.