What does participation mean? An insider perspective from people with disabilities
What does participation mean? An insider perspective from people with disabilities
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DOI：
10.1080/09638280701625534
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发表时间：
2008-01-01
影响因子：
2.2
通讯作者：
Rodriguez, Evelyn
中科院分区：
文献类型：
--
作者：
Hammel, Joy;Magasi, Susan;Rodriguez, Evelyn
目的.虽然参与是一个重要的概念和有价值的目标，但如何将其概念化、定义和衡量却大相径庭。这种定性的，多站点的研究试图获得一个内部的角度来看，从残疾人接地什么参与的意思，如何描述它，以及参与的障碍和支持。63人自我识别与不同的残疾参加了定性焦点小组sites. Results。与会者将参与概念化为一组价值观，其中包括积极和有意义的参与/成为其中的一部分，选择和控制，获取和机会/权利，个人和社会责任，影响和支持他人，以及社会联系，包容和成员资格。没有出现理想或最佳参与的黄金标准;没有人定义活动的集合或频率来解释“充分”参与。与会者表示，需要自由地按照自己的条件界定和追求参与，而不是满足预先确定的社会规范。参与被视为既是一种权利，也是一种责任，受个人和社会的影响并归于个人和社会。参与不是在真空中发生的;环境动态地影响参与。这一概念框架的评估，研究和系统级的变化，以支持残疾人参与的影响进行了讨论。
Purpose. Although participation is an important construct and valued goal, how it is conceptualized, defined and measured varies widely. This qualitative, multi-site study sought to gain an insider perspective from people with disabilities in grounding what participation means, how to characterize it, and the barriers and supports to participation.Method. Sixty-three people self-identifying with diverse disabilities participated in qualitative focus groups across sites.Results. Participants conceptualized participation as a cluster of values that included active and meaningful engagement/being a part of, choice and control, access and opportunity/enfranchisement, personal and societal responsibilities, having an impact and supporting others, and social connection, inclusion and membership.Conclusions. No gold standard for ideal or optimal participation emerged; no one defined set or frequency of activities accounted for 'full' participation. Participants described needing to be free to define and pursue participation on their own terms rather than meeting predetermined societal norms. Participation was viewed as both a right and a responsibility, influenced by and ascribed to the person and to the society. Participation does not occur in a vacuum; the environment dynamically influences participation. Implications of this conceptual framing for assessment, research and systems level change to support participation of people with disabilities are discussed.