The disclosure of a diagnosis of an autistic spectrum disorder - Determinants of satisfaction in a sample of Scottish parents
The disclosure of a diagnosis of an autistic spectrum disorder - Determinants of satisfaction in a sample of Scottish parents
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DOI：
10.1177/1362361303007001004
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发表时间：
2003-03-01
期刊：
影响因子：
5.2
通讯作者：
Knussen, C
中科院分区：
文献类型：
--
作者：
Brogan, CA;Knussen, C
使用126名家长填写的自我报告问卷，调查了自闭症谱系障碍患者对诊断结果披露的满意度。在满意度评分中，SS%表示他们对披露的信息感到满意或非常满意。如果家长对专业人员的态度和提供的信息的质量给予积极的评价，如果他们得到书面信息和提问的机会，如果他们早期的怀疑被专业人员接受，他们更有可能感到满意。这些因素被组合成一个全球满意度指数；得分较高的人更有可能被诊断为阿斯伯格综合症(而不是自闭症)，有明确的诊断，以及孩子目前没有接受教育。这些结果强调了在披露面谈过程中家长和专业人员之间互动的重要性。
Satisfaction with disclosure of the diagnosis of an autistic spectrum disorder was investigated using a self-report questionnaire completed by 126 parents. On a rating of satisfaction, SS percent indicated that they were satisfied or very satisfied with the disclosure. Parents were more likely to be satisfied if they gave positive ratings to the manner of the professional and the quality of the information provided; if they had been given written information and the opportunity to ask questions; and if their early suspicions had been accepted by professionals. These factors were combined into a global index of satisfaction; those gaining higher scores were more likely to have been given the diagnosis of Asperger syndrome (as opposed to autism), to have had a definite diagnosis, and to have children who were not currently in an educational placement. These results underline the importance of the interaction between parent and professional during the disclosure interview.