Common Language Description of the Term Rheumatic and Musculoskeletal Diseases (RMDs) for Use in Communication With the Lay Public, Healthcare Providers, and Other Stakeholders Endorsed by the European League Against Rheumatism (EULAR) and the American College of Rheumatology (ACR)
Common Language Description of the Term Rheumatic and Musculoskeletal Diseases (RMDs) for Use in Communication With the Lay Public, Healthcare Providers, and Other Stakeholders Endorsed by the European League Against Rheumatism (EULAR) and the American College of Rheumatology (ACR)
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DOI：
10.1002/art.40448
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发表时间：
2018-06-01
影响因子：
13.3
通讯作者：
Lakhanpal, Sharad
中科院分区：
文献类型：
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作者：
van der Heijde, Desiree;Daikh, David I.;Lakhanpal, Sharad
由执业和学术风湿病学家、风湿病研究人员和患者代表组成的欧洲反风湿病联盟-美国风湿病学院工作组创建了一份简明扼要的一般声明，描述了成人和儿童的风湿和肌肉骨骼疾病（RMD），其语言可用于与普通公众、媒体、医疗保健提供者和其他利益相关者的对话。根据文献综述，认为在RMD描述中纳入几个要素很重要。首先，RMD包括许多不同的疾病，可以影响任何年龄的人，包括儿童。第二，不同的RMD有不同的病理生理学途径。第三，应强调RMD对个人和社会的影响。工作小组同意，有关条文的措辞应能让一般市民明白。风湿性和肌肉骨骼疾病（Rheumatic and Musculoskeletal diseases，RMD）是一组不同的疾病，通常影响关节，但可以影响身体的任何器官。有超过200种不同的RMD，影响儿童和成人。它们通常是由免疫系统问题，炎症，感染或关节，肌肉和骨骼的逐渐恶化引起的。这些疾病中有许多是长期的，并随着时间的推移而恶化。它们通常是痛苦的，并限制功能。在严重的情况下，RMD可能导致严重的残疾，对生活质量和预期寿命产生重大影响。“这一描述可供流变学团体、研究人员和那些从事与RMD相关的宣传和教育工作的人使用。
A European League Against Rheumatism-American College of Rheumatology working group consisting of practicing and academic rheumatologists, a rheumatology researcher, and a patient representative created a succinct general statement describing rheumatic and musculoskeletal diseases (RMDs) in adults and children in language that can be used in conversations with the lay public, media, healthcare providers, and other stakeholders. Based on the literature review, several elements were deemed important for inclusion in the description of RMDs. First, RMDs encompass many different diseases that can affect individuals at any age, including children. Second, there are various pathophysiological pathways underlying different RMDs. Third, the impact of RMDs on individuals and society should be emphasized. The working group agreed that the language should be comprehensible to the lay public. Thus, the following description of RMDs has been developed: Rheumatic and musculoskeletal diseases (RMDs) are a diverse group of diseases that commonly affect the joints, but can affect any organ of the body. There are more than 200 different RMDs, affecting both children and adults. They are usually caused by problems of the immune system, inflammation, infections, or gradual deterioration of joints, muscles, and bones. Many of these diseases are long term and worsen over time. They are typically painful and limit function. In severe cases, RMDs can result in significant disability, having a major impact on both quality of life and life expectancy." This description can be used by rheumatology groups, researchers, and those who work in advocacy and education related to RMDs.