Perceptions of Youth and Parent Decision-Making Roles Regarding Recombinant Human Growth Hormone Treatment.
Perceptions of Youth and Parent Decision-Making Roles Regarding Recombinant Human Growth Hormone Treatment.
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重组人生长激素（rhGH）是规定与生长激素缺乏症（GHD）的青年，以支持正常生长，并确保健康的身体发育，和青年没有GHD，以解决身高问题。尚未探讨青年参与rhGH治疗决策的看法。本研究的目的是检查青年和父母的角色在决定周围的rhGH治疗的看法。接受过矮小评估的青少年（n = 22，11.5 ± 2.0岁）及其父母（n = 22）在收到刺激测试结果后参加了半结构式访谈。访谈揭示了以下主题：1）父母为青年提供支持; 2）父母促进青年参与决策; 3）青年没有角色或不记得自己的角色; 4）青年不记得与父母或供应商的对话。父母通过分享信息和征求子女的意见，为子女的参与提供便利。虽然一些参与者将青年描述为具有实质性的决策作用，但并非所有青年都认为他们参与其中，一些青年无法回忆起有关rhGH的对话。父母可以通过使用适合发展的语言进行对话来促进青少年的参与，这对青少年感到被赋予权力和发展对自己照顾的效能至关重要。
Recombinant human growth hormone (rhGH) is prescribed to youth with growth hormone deficiency (GHD) to support normal growth and ensure healthy physical development, and to youth without GHD to address height concerns. Perceptions of youth involvement in rhGH treatment decisions have not been explored. This study aimed to examine perceptions of youth and parent roles in decisions around rhGH treatment. Youth (n = 22, 11.5 ± 2.0 years) who had undergone evaluation for short stature and their parents (n = 22) participated in semi-structured interviews after stimulation test results had been received. Interviews revealed the following themes: 1) parent provided youth with support; 2) parent facilitated youth’s decision-making involvement; 3) youth had no role or did not remember their role; and 4) youth did not remember conversations with their parents or providers. Parents facilitated their children’s involvement by sharing information and seeking their opinions. Whereas some participants described youth as having a substantial decision-making role, not all youth felt they were involved, and some youth could not recall conversations about rhGH. Parents can bolster youth involvement by having conversations using developmentally appropriate language, which is critical to youth feeling empowered and developing efficacy over their own care.