Voices that matter: end-of-life care in two acute hospitals from the perspective of bereaved relatives.
Voices that matter: end-of-life care in two acute hospitals from the perspective of bereaved relatives.
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DOI：
10.1186/s12904-018-0365-6
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发表时间：
2018-10-19
影响因子：
3.1
通讯作者：
Hynes G
中科院分区：
文献类型：
--
作者：
Donnelly S;Prizeman G;Coimín DÓ;Korn B;Hynes G
临终关怀（EoLC）是一种触及每个人生命的体验。在世界发达国家，死于急性医院是一件常见的事情。以前的研究表明，EoLC有很大的差异，有时质量很差。评估和衡量所提供的护理质量是所有卫生保健系统的关键组成部分。本文报告了在爱尔兰两家成人急性医院进行的丧亲后调查中提出的开放式自由文本问题的定性分析。这是一项定量描述性的丧亲后邮政调查，利用非正式护理人员意见-服务评估问卷的改编版本，从死亡患者的亲属或朋友那里回顾性收集数据。VOICES MaJam有29个核心问题，7个问题要求提供个人人口统计信息，4个开放式问题收集关于患者最后一次住院期间护理经历的描述性数据。共回收有效问卷356份。使用模板分析框架方法，使用NVivo 10对定性数据进行管理、编码和分析。四分之三（75%:n = 268）的人至少回答了一个开放式问题。出现了几个关键的主题，指出了需要特别注意的EoLC领域。两个主题涉及如何满足护理需求以及医院环境如何对EoLC体验产生关键影响。其余三个主题更多地涉及人际关系，包括患者是否得到尊严和尊重，患者及其家属的心理、情感和精神需求以及沟通。急症医院需要确保患者及其家属获得高质量的EoLC。所有医院和保健机构都应考虑征求丧生者亲属的意见，以确定临终护理的质量。这项研究有助于我们理解和了解什么是好的EoLC，以及在哪里可以改进护理，从而使医院能够指导和通知质量改进。
End-of-life care (EoLC) is an experience that touches the lives of everyone. Dying in an acute hospital is a common occurrence in developed countries across the world. Previous studies have shown that there is wide variation in EoLC and at times is experienced as being of poor quality. Assessing and measuring the quality of care provided is a key component of all healthcare systems. This paper reports on the qualitative analysis of open-ended free text questions that were asked as part of a post-bereavement survey conducted in two adult acute hospitals in Ireland. This was a quantitative descriptive post-bereavement postal survey, gathering data retrospectively from relatives or friends of patients who died, utilising an adapted version of the VOICES (Views of Informal Carers - Evaluation of Services) questionnaire. VOICES MaJam has 29 core questions, seven questions requesting personal demographic information and four open-ended questions gathering descriptive data about the care experience during the patient’s last admission to hospital. A total of 356 valid questionnaires were returned. Qualitative data were managed, coded and analysed with NVivo 10, using a template analysis framework approach. Three quarters (75%: n = 268) responded to at least one of the open-ended questions. Several key themes emerged, indicating areas that require particular attention in EoLC. Two themes relate to how care needs are met and how the hospital environment has a critical influence on EoLC experiences. The remaining three themes relate more to the interpersonal context including whether patients are treated with dignity and respect, the psychological, emotional and spiritual needs of patients and their family members and communication. Acute hospitals need to ensure that patients and their relatives receive high quality EoLC. Seeking the views of bereaved relatives should be considered by all hospitals and healthcare settings to ascertain the quality of care at end of life. This study contributes to our understanding and knowledge of what good EoLC looks like and where care can be improved, thus enabling hospitals to direct and inform quality improvement.
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影响因子：
4.4
作者：
Gomes, Barbara;Higginson, Irene J.
通讯作者：
Higginson, Irene J.
DOI：
10.1177/1049909113512718
发表时间：
2015-02-01
影响因子：
1.9
作者：
Bussmann, Sonja;Muders, Pia;Weber, Martin
通讯作者：
Weber, Martin
影响因子：
4.4
作者：
Edmonds, P;Rogers, A
通讯作者：
Rogers, A
影响因子：
4.7
作者：
Addington-Hall, J;McPherson, C
通讯作者：
McPherson, C
影响因子：
2.2
作者：
Germain, Alison;Mayland, Catriona R.;Jack, Barbara A.
通讯作者：
Jack, Barbara A.