Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute
Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute
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DOI：
10.1007/s11136-014-0893-3
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发表时间：
2015-05-01
影响因子：
3.5
通讯作者：
Daugherty, Sarah
中科院分区：
文献类型：
--
作者：
Frank, Lori;Forsythe, Laura;Daugherty, Sarah
以患者为中心的结果研究所（PCORI）成立于2010年，旨在资助以患者为中心的比较有效性研究。PCORI对研究资金的要求包括患者和其他利益相关者在研究中的有意义的参与。PCORI参与研究的方法是由以患者为中心的结果研究（PCOR）的概念模型指导的，该模型提供了一个理解参与研究的结构。为了理解和提高参与研究，PCORI正在向获奖者和其他利益相关者学习。这些努力沿着PCORI的能力建设和指导获奖者通过参与规则。PCRI的独特的模式，让病人和其他利益相关者在资助申请的优点审查。通过专门的研究资金和太平洋合作研究所的主要基础设施倡议-太平洋合作研究所网络，为了解参与研究提供了额外的支助。此外，太平洋气候变化研究所还通过太平洋气候变化研究所网络，让利益攸关方参与各种活动，包括审查供资申请和建立核证减排研究基础设施。正在评估参与的综合方法，以帮助指导该领域在研究参与方面有前途的做法。
To provide an overview of PCORI's approach to engagement in research.The Patient-Centered Outcomes Research Institute (PCORI) was established in 2010 to fund patient-centered comparative effectiveness research. Requirements for research funding from PCORI include meaningful engagement of patients and other stakeholders in the research. PCORI's approach to engagement in research is guided by a conceptual model of patient-centered outcomes research (PCOR), that provides a structure for understanding engagement in research.To understand and improve engagement in research PCORI is learning from awardees and other stakeholders. Those efforts are described along with PCORI's capacity building and guidance to awardees via the Engagement Rubric. PCORI's unique model of engaging patients and other stakeholders in merit review of funding applications is also described. Additional support for learning about engagement in research is provided through specific research funding and through PCORI's major infrastructure initiative, PCORnet.PCORI requires engagement of stakeholders in the research it funds. In addition PCORI engages stakeholders in activities including review of funding applications and establishment of CER research infrastructure through PCORnet. The comprehensive approach to engagement is being evaluated to help guide the field toward promising practices in research engagement.