The Impact of the Quality of Life Concept on the Field of Intellectual Disability

The Impact of the Quality of Life Concept on the Field of Intellectual Disability
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生活质量观念对智力障碍领域的影响

DOI:
10.1093/oxfordhb/9780195398786.013.013.0004
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发表时间:
2013
期刊:
影响因子:
--
通讯作者:
Miguel Ángel Verdugo Alonso
Miguel Ángel Verdugo Alonso
中科院分区:
--
文献类型:
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作者:
R. Schalock;Miguel Ángel Verdugo Alonso

文献摘要

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本章重点介绍生活质量(QOL)概念对智力和密切相关的发育障碍(IDD)患者的五个重要影响。本章首先讨论了范式和范式转变,并探讨了当前的IDD范式如何改变了科学家或从业者与IDD患者之间互动的概念和服务提供框架。第二部分描述了生活质量概念对IDD患者的公共和组织政策和实践的五个重要影响。这一章的最后提出了一个简单的问题:“生活质量的概念真的起作用了吗?”
This chapter focuses on five significant impacts that the quality of life (QOL) concept has had on persons with intellectual and closely related developmental disabilities (IDD). The chapter begins with a discussion of paradigms and paradigmatic shifts and explores how the current IDD paradigm has altered the conceptual and service delivery framework that mediates the interaction between a scientist or practitioner and persons with IDD. The second section describes the five significant impacts the QOL concept has had on public and organization policies and practices toward persons with IDD. The chapter concludes by asking a simple question:“Has the QOL concept really made a difference?”