Bridging the divide: building infrastructure to support community-academic partnerships and improve capacity to conduct patient-centered outcomes research
Bridging the divide: building infrastructure to support community-academic partnerships and improve capacity to conduct patient-centered outcomes research
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DOI：
10.1007/s13142-017-0487-z
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发表时间：
2017-12-01
影响因子：
3.6
通讯作者：
Mullins, C. Daniel
中科院分区：
文献类型：
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作者：
Huang, Jennifer;Lipman, Paula Darby;Mullins, C. Daniel
为了使研究有用、值得信赖，并最终将研究结果更多地传播给患者和社区，重要的是培训和指导学术研究人员，使社区成员有意义地参与以患者为中心的结果研究(PCOR)。因此，研究机构有必要加强其基础设施，以支持变革和组织振兴方案。在巴尔的摩的马里兰大学，患者-以患者为中心参与评估治疗的有效性-专注于改进PCOR方法和解决健康差距。它依靠以证据为基础的参与方法来维持和利用创新的伙伴关系，从而激励患者、卫生保健提供者和学术合作伙伴参与实施和传播PCOR。方案组成部分涉及培训需求、双向参与、文化能力以及传播和实施。活动(由社区代表、大学学校领导、患者权益倡导者和变革与复兴方案专家指导)包括提供资源、实施变革与复兴项目、吸引社区成员参与以及传播变革与复兴方案的调查结果。通过强调变革和组织振兴方案广泛的主题和方法，并通过与社区成员和研究人员建立可持续的关系，患者成功地建立了双向伙伴关系，并为新一代熟练的变革和复兴方案研究人员提供了业务和科学支持。成效的早期证据包括在培训和指导学生和调查人员方面取得进展，提交的变革和改革方案提案有所增加，以及社区知情的传播战略。像Patients这样的项目加强了弥合学术界和社区之间传统鸿沟的价值，以支持患者和社区参与的传播和实施研究，并促进可持续的PCOR基础设施。
For research to be useful, trustworthy, and ultimately lead to greater dissemination of findings to patients and communities, it is important to train and mentor academic researchers to meaningfully engage community members in patient-centered outcomes research (PCOR). Thus, it is necessary for research institutions to strengthen their underlying infrastructure to support PCOR. PATIENTS-PATient-centered Involvement in Evaluating effectiveNess of TreatmentS-at the University of Maryland, Baltimore, focuses on improving PCOR methods and addressing health disparities. It relies on evidence-based engagement methods to sustain and leverage innovative partnerships so patients, health care providers, and academic partners are motivated to participate in the conduct and dissemination of PCOR. Program components address training needs, bi-directional engagement, cultural competency, and dissemination and implementation. Activities (guided by community representatives, leadership from university schools, patient advocates, and PCOR experts) include providing resources, conducting PCOR projects, engaging community members, and disseminating PCOR findings. With its emphasis on the broad range of PCOR topics and methods, and through fostering sustainable relationships with community members and researchers, PATIENTS has successfully cultivated bidirectional partnerships and provided operational and scientific support for a new generation of skilled PCOR researchers. Early evidence of effectiveness includes progress in training and mentoring students and investigators, an increase in submission of PCOR proposals, and community-informed strategies for dissemination. Programs such as PATIENTS reinforce the value of bridging the traditional divide between academia and communities to support patient-and community-engaged dissemination and implementation research and foster sustainable PCOR infrastructure.