Content validity in the PROMIS social-health domain: a qualitative analysis of focus-group data
Content validity in the PROMIS social-health domain: a qualitative analysis of focus-group data
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DOI：
10.1007/s11136-008-9352-3
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发表时间：
2008-06-01
影响因子：
3.5
通讯作者：
DeVellis, Robert F.
中科院分区：
文献类型：
--
作者：
Castel, Liana D.;Williams, Kelly A.;DeVellis, Robert F.
目的我们的目的是通过比较预先指定的概念模型与焦点小组参与者确定为重要的社会健康相关结果的概念，评估患者报告结果测量信息系统（PROMIS）社会健康项目库的内容效度。这些数据将通知的过程中，提高健康相关的生活质量的measures.Methods的范围内的社会限制，由于慢性健康状况的25例患者被招募在两个网站，四个焦点小组进行。评分员独立分类参与者的声明使用层次结构，嵌套的图式，包括健康相关的结果，角色表现，角色满意度，家庭/朋友，工作，和leisure.Results出现的关键主题是履行家庭和工作的责任，并完成了责任与享受活动之间的区别。虽然焦点小组的参与者确定志愿服务和宠物所有权作为重要的社会健康相关的概念，这些都没有在我们原来的概念模型。满意度的概念往往被发现重叠的概念performance.Conclusions我们的概念模型似乎是全面的，但正在进一步完善，以更适当地（a）区分责任与自由裁量权的活动，和（B）的结果，满意度，因为它涉及到损害健康的社交及其他领域。
Purpose Our aim was to assess the content validity of the Patient-Reported Outcomes Measurement Information System (PROMIS) social health item banks by comparing a prespecified conceptual model with concepts that focus-group participants identified as important social-health-related outcomes. These data will inform the process of improving health-related quality-of-life measures.Methods Twenty-five patients with a range of social limitations due to chronic health conditions were recruited at two sites; four focus groups were conducted. Raters independently classified participants' statements using a hierarchical, nested schema that included health-related outcomes, role performance, role satisfaction, family/friends, work, and leisure.Results Key themes that emerged were fulfilling both family and work responsibilities and the distinction between activities done out of responsibility versus enjoyment. Although focus-group participants identified volunteerism and pet ownership as important social-health-related concepts, these were not in our original conceptual model. The concept of satisfaction was often found to overlap with the concept of performance.Conclusions Our conceptual model appears comprehensive but is being further refined to more appropriately (a) distinguish between responsibilities versus discretionary activities, and (b) situate the outcome of satisfaction as it relates to impairment in social and other domains of health.