Social support needs: Discordance between home hospice nurses and former family caregivers
Social support needs: Discordance between home hospice nurses and former family caregivers
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DOI：
10.1017/s1478951513001156
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发表时间：
2015-06-01
影响因子：
2.2
通讯作者：
Ellington, Lee
中科院分区：
文献类型：
--
作者：
Reblin, Maija;Cloyes, Kristin G.;Ellington, Lee
目的：本研究的两个目的是：(1)确定安宁疗护护士和家庭照护者最常引用的五种社会支持类型（资讯型、尊重型、情感型、有形型、归属感型），以及(2)确定支持需求感知的匹配度。方法：作为一个更大的多阶段项目的一部分，与前家庭照顾者和安宁疗护护士进行焦点小组讨论他们的居家安宁疗护经验，并收集他们对该疗护所涉及的重要问题的意见。根据文献中的定义，焦点小组讨论的记录被编码为支持类型（信息性、尊重性、情感性、有形性、归属感）。比较护士和护理人员的数据以评估潜在的匹配。结果：编码数据的分析表明，护士看到不同类型的支持，需要在相同的措施在他们的案件负荷，而护理人员表示优先考虑某些类型的支持。给出并讨论了每种支护类型的实例说明。结果的意义：因为所提供的与所期望的支持类型相匹配的支持与改善的身体和心理结果有关，所以在特别容易受到心理压力的医疗保健人群中，包括家庭临终关怀病人的家庭照顾者，关注这种匹配是很重要的。这项研究暗示了干预措施，以匹配支持提供照顾者的需求，或教育家庭安宁疗护提供者，以确保他们不仅对广泛需求的可能性敏感，而且对量身定制这些需求的护理必要性敏感。
Objective: The two goals of our study were to (1) identify which of five types of social support (Informational, Esteem, Emotional, Tangible, Belonging) are most cited by hospice nurses and family caregivers and (2) determine the match in perception of support needs.Method: As part of a larger multiphase project, focus groups were conducted with former family caregivers and hospice nurses to discuss their experiences of home hospice care and to gather their opinions on the important issues involved in that care. Transcripts of focus group discussions were coded for support type (Informational, Esteem, Emotional, Tangible, Belonging) based on definitions from the literature. Nurse and caregiver data were compared to assess for potential match.Results: Analysis of coded data suggested that nurses see different types of support to be needed in equal measure across their caseloads, while caregivers expressed priorities for some types of support. Illustrative examples of each type of support are provided and discussed.Significance of Results: Because matching support provided with the type of support desired has been linked to improved physical and psychological outcomes, it is important to focus on this match in healthcare populations particularly vulnerable to psychological stress, including family caregivers of home hospice patients. This research has implications for interventions to match support provision to caregiver needs, or for education for home hospice providers to ensure that they are not only sensitive to the possibility of a broad range of needs but also to the necessity to tailor care to those needs.