Siblings of Adults With Developmental Disabilities: Psychosocial Outcomes, Relationships, and Future Planning
Siblings of Adults With Developmental Disabilities: Psychosocial Outcomes, Relationships, and Future Planning
复制标题
DOI：
10.1111/j.1741-1130.2010.00243.x
复制
发表时间：
2010-03-01
影响因子：
1.7
通讯作者：
Arnold, Catherine Keiling
中科院分区：
文献类型：
--
作者：
Heller, Tamar;Arnold, Catherine Keiling
由于智力和发育障碍者的寿命延长以及他们父母的老龄化，兄弟姐妹在他们的生活中扮演着越来越重要的角色，因此在这一领域有必要进行更多的调查工作。为此，作者回顾了有关智力和发育障碍成人兄弟姐妹的英语文献，重点研究了三个主要问题：(1)有智力和发育障碍的兄弟姐妹对无残疾的兄弟姐妹的社会心理结果是什么？(2)哪些因素与兄弟姐妹关系的性质有关？(3)当父母不能再提供照顾时，哪些因素与未来计划有关，包括预期的和未来的关系？本文献综述回顾了1970年至2008年期间发表的关于21岁以上的成年兄弟姐妹的研究，这些研究涉及关系、心理社会结果和/或参与未来规划。确定了23项相关研究。总的来说，这些研究呈现出一个复杂的，但总体上积极的画面，有一个残疾的兄弟姐妹的社会心理结果。他们还指出，兄弟姐妹倾向于与残疾兄弟姐妹保持长期的亲密关系，并期望随着年龄的增长承担更多的支持角色。
As siblings play an increasing role in the lives of people with intellectual and developmental disabilities as a result of the longer lifespan of this population and the aging of their parents, more investigative work in this area is warranted. To lay a foundation for this, the authors reviewed the English-language literature on siblings of adults with intellectual and developmental disabilities, focusing on three main questions: (1) what are the psychosocial outcomes of having a sibling with an intellectual and developmental disabilities on the sibling without a disability?; (2) what factors relate to the nature of the sibling relationship?; and (3) what factors relate to future planning, including expected and future relationships when parents can no longer provide care? This literature review looked at published work for the period 1970-2008 on adult siblings over 21 years of age that addressed relationships, psychosocial outcomes, and/or involvement in future planning. Twenty-three relevant studies were identified. Overall, these studies present a mixed, but generally positive picture of the psychosocial outcomes of having a sibling with a disability. They also indicate that siblings tend to have long-lasting close relationships with their siblings with a disability and anticipate taking on greater supportive roles as both grow older.