Privacy as Articulation Work in HIV Health Services

Privacy as Articulation Work in HIV Health Services
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隐私作为艾滋病毒卫生服务中的衔接工作

DOI:
10.1145/2675133.2675204
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发表时间:
2015
期刊:
--
影响因子:
--
通讯作者:
Papoutsi C
Papoutsi C
中科院分区:
--
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--
作者:
Papoutsi C

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关于健康信息隐私的规范性说明通常强调监管数据共享的重要性。然而,很少有人注意到卫生专业人员如何执行和谈判隐私的做法,在高度多学科,技术为媒介的医疗工作。本文探讨了信息隐私的做法,在两个艾滋病毒门诊诊所设在两个NHS医院在伦敦(英国)。方法包括46个半结构化访谈,主要是卫生专业人员和技术开发人员,人种学观察和文件分析。借鉴经验知情的理解隐私的“衔接工作”,我们专注于信息隐私的做法的不确定性,并检查翻译隐私所需的工作,从规范的专业职责,制定医疗实践。这项分析还强调了隐私实践的不可见性及其在提供技术支持的医疗保健中的协调作用。本文最后讨论了实践和技术设计的影响。
Normative accounts on health information privacy often highlight the importance of regulating data sharing. Yet, little attention has been paid to how health professionals perform and negotiate privacy practices in highly multidisciplinary, technologically-mediated medical work. This paper examines information privacy practices in two HIV outpatient clinics based in two NHS hospitals in London (UK). Methods include 46 semi-structured interviews, primarily with health professionals and technology developers, ethnographic observation and document analysis. Drawing on an empirically informed understanding of privacy as 'articulation work', we focus on the indeterminate nature of information privacy practices and examine the work required to translate privacy, from a normative professional duty to an enacted medical practice. This analysis also highlights the invisibility of privacy practices and their coordinating role in delivering technologically-supported medical care. The paper ends with a discussion of implications for practice and technology design.
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