Being Me and Being Us in a Family Living Close to Death at Home

Being Me and Being Us in a Family Living Close to Death at Home
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DOI:
10.1177/1049732310396102
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发表时间:
2011-05-01
影响因子:
3.2
通讯作者:
Sandberg, Jonas
Sandberg, Jonas
中科院分区:
医学2区
文献类型:
--
作者:
Carlander, Ida;Ternestedt, Britt-Marie;Sandberg, Jonas

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我们使用解释性描述来描述有一位成员患有危及生命的疾病的家庭如何体验和处理每天接近死亡的生活。我们对5个家庭进行了28次个人、夫妻和小组访谈。我们发现了两种模式,即“在一个濒临死亡的家庭中做我”和“在一个濒临死亡的家庭中做我们”。“做我自己”意味着家庭中的每个人都必须面对即将到来的死亡,无论他或她是否患有危及生命的疾病。这与提升个人自我形象或“自我”的方式有关。这种模式与“成为我们”的模式同时出现,或者换句话说,成为一个家庭,处理即将到来的死亡和一个新的“我们”作为一个群体。“追求接近死亡的最佳生活方式”是核心主题。
We used interpretive description to describe how everyday life close to death was experienced and dealt with in families with one member who had a life-threatening illness. We performed 28 individual, couple, and group interviews with five families. We found two patterns, namely, "being me in a family living close to death" and "being us in a family living close to death." "Being me" meant that every individual in the family had to deal with the impending death, regardless of whether or not he or she was the person with the life-threatening illness. This was linked to ways of promoting the individual's self-image, or "me-ness." This pattern was present at the same time as the pattern of "being us," or in other words, being a family, and dealing with impending death and a new "we-ness" as a group. "Striving for the optimal way of living close to death" was the core theme.