The general public's information needs and perceptions regarding hereditary cancer: an application of the Integrated Change Model
The general public's information needs and perceptions regarding hereditary cancer: an application of the Integrated Change Model
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DOI：
10.1016/j.pec.2004.01.002
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发表时间：
2005-02-01
影响因子：
3.5
通讯作者：
Honing, C
中科院分区：
文献类型：
--
作者：
de Vries, H;Mesters, I;Honing, C
综合变化模型（I-Change模型）用于分析公众对接受遗传因素在癌症方面的作用的信息的需求和看法。一项对457名荷兰成年人的研究结果表明，25%的人正确地指出了遗传因素可能起作用的癌症类型。然而，受访者高估了导致乳腺癌的遗传因素的作用。对预警信号的认识很低，对遗传模式的认识也很低。参与者希望了解具有遗传因素的癌症类型，如何识别家族中的遗传性癌症，个人风险以及当怀疑遗传易感性时应采取的步骤。最受欢迎的信息渠道是传单、全科医生和互联网。对获得遗传和癌症信息感兴趣的受访者往往是女性，她们有遗传病的经历，了解更多，感受到更多的优势，在寻求信息时获得更多的社会支持，自我效能感水平更高。教育应该概述关于遗传性癌症的最重要的事实，如何获得支持，并对遗传因素的影响产生现实的期望。(C) 2004年由爱思唯尔爱尔兰有限公司出版
The Integrated Change Model (the I-Change Model) was used to analyse the general public's need and perceptions concerning receiving information on the role of hereditary factors with regard to cancer. The results from a study in 457 Dutch adults showed that 25% correctly indicated the types of cancer where hereditary factors can play a role. Respondents, however, overestimated the role of hereditary factors causing breast cancer. Recognition of warning signs was low, as was the recognition of inheritance patterns. Participants wanted to know the types of cancer with hereditary aspects, how to recognise hereditary cancer in the family, personal risks and the steps to be taken when hereditary predisposition is suspected. The most popular information channels mentioned were leaflets, the general practitioner, and the Internet. Respondents interested in receiving information on heredity and cancer were more often female, had had experiences with hereditary diseases, had more knowledge, perceived more advantages, encountered more social support in seeking information, and had higher levels of self-efficacy. Education should outline the most important facts about hereditary cancer, how to get support, and create realistic expectations of the impact of genetic factors. (C) 2004 Published by Elsevier Ireland Ltd.