Developing a contemporary functional outcome measure for spinal cord injury research
Developing a contemporary functional outcome measure for spinal cord injury research
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DOI：
10.1038/sc.2009.131
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发表时间：
2010-03-01
期刊：
影响因子：
2.2
通讯作者：
Tulsky, D. S.
中科院分区：
文献类型：
--
作者：
Slavin, M. D.;Kisala, P. A.;Tulsky, D. S.
研究设计：本研究采用焦点小组讨论的定性分析。目的：本研究的主要目的是选择功能性活动纳入题库，这是开发脊髓损伤计算机自适应测试(SCI-CAT)的第一步。背景：这项多地点研究是在美国国家脊髓损伤模型系统项目中进行的。方法：包括四肢瘫痪和截瘫患者和临床医生在内的焦点小组讨论。使用扎根的理论方法对成绩单进行分析。结果：焦点小组讨论分析确定了326个功能活动项目，符合国际功能、残疾与健康分类(ICF)框架的分类：活动(193个项目)，包括在手册(44个项目)和电动轮椅(19个项目)中的功能评估；自我照顾(109个项目)；沟通(19个项目)。与性功能相关的条目也被确定(5个条目)。结论：SCI-CAT项目库包括评估对SCI患者重要的功能活动的条目。项目涵盖了广泛的功能能力，并反映了大多数ICF类别。SCI-CAT库目前正在进行实地测试，以开发一个校准的题库。进一步的发展将产生适合于脊髓损伤研究的功能活动的CAT。脊髓(2010年)48,262-267；doi：10.1038/sc.2009.131；在线发布
Study design: This study used qualitative analysis of focus group discussions.Objective: The primary objective was to select functional activities to include in an item pool, which is the first step in developing a spinal cord injury computer adaptive test (SCI-CAT).Setting: This multisite study was conducted at six US National Spinal Cord Injury Model Systems Programs.Methods: Focus group discussions, which included persons with tetraplegia and paraplegia and clinicians, were conducted. Transcripts were analyzed using a grounded theory approach. Functional activities were identified, binned, winnowed, written as functional items, and cognitively tested.Results: Focus group discussion analysis identified 326 functional activity items that fit into categories outlined in the International Classification of Functioning, Disability and Health (ICF) framework: Mobility (193 items), including assessment of functioning in a manual (44 items) and power wheelchair (19 items); self-care (109 items); and communication (19 items). Items related to sexual function were also identified (5 items).Conclusion: The SCI-CAT item pool includes items that assess functional activities important to persons with SCI. Items cover a wide range of functional ability and reflect most ICF categories. The SCI-CAT pool is currently being field tested to develop a calibrated item bank. Further development will yield a CAT of functional activities appropriate for SCI research. Spinal Cord (2010) 48, 262-267; doi: 10.1038/sc.2009.131; published online 20 October 2009