Information needs and decisional preferences in women with breast cancer
Information needs and decisional preferences in women with breast cancer
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DOI：
10.1001/jama.277.18.1485
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发表时间：
1997-05-14
影响因子：
120.7
通讯作者：
Mueller, B
中科院分区：
文献类型：
--
作者：
Degner, LF;Kristjanson, LJ;Mueller, B
目标。-确定患有乳腺癌的妇女想要参与医疗决策的程度，她们认为她们已经达到了她们所希望的参与程度的程度，以及她们认为最重要的信息类型。设计和设置。在马尼托巴省温尼伯的2个三级肿瘤转诊诊所和2个社区医院肿瘤诊所进行横断面调查。-连续抽样1012名确诊为乳腺癌的妇女，她们计划在4家医院肿瘤诊所中的1家就诊。主要结果测量。-采用以下措施：(1)参与治疗决策的不同程度的偏好；(2)受试者认为他们已经达到了他们所希望的决策参与水平的程度；(3)对信息的优先需求，以及这些需求如何因选定的社会人口、疾病和治疗变量而不同。-总共22%的女性希望选择自己的癌症治疗方法，44%的女性希望与医生合作选择治疗方法，34%的女性希望将这一责任委托给医生。只有42%的女性认为她们在决策方面达到了自己想要的控制水平。排名最高的两种信息类型与了解治愈和疾病传播的机会有关。50岁以下的女性比年龄较大的女性更看重身体和性吸引力的信息
Objective.-To determine the degree of involvement women with breast cancer wanted in medical decision making, extent to which they believed they had achieved their preferred level of involvement, and types of information they judged to be most important.Design and Setting.-Cross-sectional survey at 2 tertiary oncology referral clinics and 2 community hospital oncology clinics in Winnipeg, Manitoba.Patients.-Consecutive sample of 1012 women with a confirmed diagnosis of breast cancer who were scheduled for a visit at 1 of 4 hospital oncology clinics.Main Outcome Measures.-The following measures were used: (1) Preferences about various levels of participation in treatment decision making; (2) the extent to which subjects believed they had achieved their preferred levels of involvement in decision making; and (3) priority needs for information and how these needs differed by selected sociodemographic, disease, and treatment variables.Results.-A total of 22% of women wanted to select their own cancer treatment, 44% wanted to select their treatment collaboratively with their physicians, and 34% wanted to delegate this responsibility to their physicians. Only 42% of women believed they had achieved their preferred level of control in decision making. The 2 most highly ranked types of information were related to knowing about chances of cure and spread of disease. Women younger than 50 years rated information about physical and sexual attractiveness as more important than did older women (P