Biobanking in British Columbia: discussions of the future of personalized medicine through deliberative public engagement
Biobanking in British Columbia: discussions of the future of personalized medicine through deliberative public engagement
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DOI：
10.2217/17410541.5.3.285
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发表时间：
2008-05-01
影响因子：
2.3
通讯作者：
Secko, David
中科院分区：
文献类型：
--
作者：
Burgess, Michael;O'Doherty, Kieran;Secko, David
在这篇文章中，我们探讨了协商民主理论和实践的作用，作为一种手段，以加强政策方法的伦理和社会问题有关的生物库。生物库被视为个性化医疗快速发展趋势的一个重要组成部分，个性化医疗虽然诱人，但也面临着与遗传歧视、隐私、知情同意有关的关键问题，以及如何建立和保持公民信任的问题。我们描述的情况下，一个审议的公众参与，一个多元化的公民团体审议的适当的价值观，应该指导生物银行在加拿大不列颠哥伦比亚省。我们认为，使用这种方法是必要的，如果我们要有意义地考虑不同的“公共利益”在生物银行的发展，从而个性化医疗。
In this article, we examine the role of deliberative democracy theory and practice as a means to enhance policy approaches to ethical and social issues related to biobanks. Biobanks are seen as a vital component in the rapid trend towards personalized medicine, which, while alluring, also face key issues relating to genetic discrimination, privacy, informed consent and a concern regarding how to develop and maintain the trust of citizens. We describe the case of a deliberative public engagement in which a diverse group of citizens deliberated on the appropriate values that should guide biobanking in British Columbia, Canada. We argue that the use of such methods is a necessity if we are to meaningfully consider diverse 'public interests' during the development of biobanks and thereby personalized medicine.