Lessons Learned in Clinical Research Recruitment of Immigrants and Minority Group Members with First-Episode Psychosis
Lessons Learned in Clinical Research Recruitment of Immigrants and Minority Group Members with First-Episode Psychosis
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DOI：
10.1007/s10903-018-0704-y
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发表时间：
2019-02-01
影响因子：
1.9
通讯作者：
Lopez, Steven Regeser
中科院分区：
文献类型：
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作者：
Hernandez, Mercedes;Franco, Richard;Lopez, Steven Regeser
招募移民和患有首发精神病(FEP)的种族和少数民族进行研究面临许多挑战。我们描述了用于招募43名患有FEP的美国拉丁裔及其家庭照顾者(n=41)的方法，这些人参与了一项缩短未经治疗的精神病持续时间的研究。一个关键的挑战是，患者没有像最初预期的那样在门诊继续治疗。为了便于在门诊护理前识别患者，我们与诊所和医院管理人员合作。许多患者和家属正在努力应对住院的后果，或者适应严重精神疾病的诊断。投入了大量时间来解决与会者的关切，并在可能的情况下为所需的服务提供便利。我们的经验强调了通过与患者、家属和利益相关者进行多次接触来建立长期关系的重要性，以解决FEP服务不足群体的招聘障碍。
Recruitment of immigrants and racial and ethnic minorities with first-episode psychosis (FEP) for research studies presents numerous challenges. We describe methods used to recruit 43 U.S. Latinos with FEP and their family caregivers (n=41) participating in a study to reduce duration of untreated psychosis. A key challenge was that patients were not continuing treatment at an outpatient clinic, as initially expected. To facilitate identification of patients prior to outpatient care, we collaborated with clinic and hospital administrators. Many patients and families were grappling with the aftermath of a hospitalization or adjusting to a diagnosis of a serious mental illness. A considerable amount of time was devoted to addressing participants' concerns and when possible, facilitating needed services. Our experience underscores the importance of establishing long-term relationships through multiple contacts with patients, families, and stakeholders to address recruitment barriers among underserved groups with FEP.