Patient and clinician perspectives on a patient-facing dashboard that visualizes patient reported outcomes in rheumatoid arthritis
Patient and clinician perspectives on a patient-facing dashboard that visualizes patient reported outcomes in rheumatoid arthritis
复制标题
DOI：
10.1111/hex.13057
复制
发表时间：
2020-04-09
影响因子：
3.2
通讯作者：
Schmajuk, Gabriela
中科院分区：
文献类型：
--
作者：
Liu, Lucy H.;Garrett, Sarah B.;Schmajuk, Gabriela
背景关于患者报告结果(PRO)的患者-临床医生沟通不良是有效治疗类风湿性关节炎(RA)的障碍。我们的目标是开发一种RA‘仪表板’，它可以促进关于专业人员的对话，并将被广泛的患者接受，包括说英语和西班牙语的患者以及健康素养足够或有限的患者。方法一组不同的类风湿性关节炎患者以及来自两个学术风湿病诊所的临床医生加入不同的焦点小组。我们征求了反馈，并对RA仪表板的模型进行了迭代更改，该仪表板使用以人为中心的设计流程可视化了专业人员。我们使用主题分析方法来确定和描述焦点小组中的主题，并使用这些洞察力来改进仪表板。结果我们进行了6个焦点小组，包括25名RA患者和3个小组，包括11名临床医生。患者和临床医生一致认为，该仪表板可以加强关于PROS和RA疾病活动的沟通，并可以促进患者的自我管理。患者在(A)理解、(B)对仪表板的显示和功能的偏好以及(C)对仪表板的期望用途方面存在差异。临床医生对在临床实践中使用仪表板的后勤问题表示了极大的担忧。结论运用以人为中心的设计原则，我们建立了一个深受患者和临床医生欢迎的RA仪表板。自定义数据显示的能力对于为具有不同需求和偏好的患者定制仪表板非常重要。临床医生提出的可行性问题应给予特别关注。
Background Poor patient-clinician communication around patient-reported outcomes (PROs) is a barrier to the effective management of rheumatoid arthritis (RA). We aimed to develop an RA 'dashboard' that could facilitate conversations about PROs and that would be acceptable to a wide range of patients, including English and Spanish speakers and patients with adequate or limited health literacy. Methods A diverse group of RA patients along with clinicians from two academic rheumatology clinics joined separate focus groups. We solicited feedback and made iterative changes to mock-ups of an RA dashboard that visualized PROs using a human-centred design process. We used the thematic analysis method to identify and characterize themes from the focus groups and used these insights to refine the dashboard. Results We conducted six focus groups involving 25 RA patients and three groups with 11 clinicians. Patients and clinicians agreed that the dashboard could enhance communication about PROs and RA disease activity and could promote patient self-management. Patients varied in their (a) comprehension, (b) preferences for the display and features of the dashboard, and (c) desired uses for the dashboard. Clinicians expressed significant concerns about the logistics of using the dashboard in clinical practice. Conclusion Using principles of human-centred design, we created an RA dashboard that was well-accepted among patients and clinicians. The ability to customize the data display is important for tailoring the dashboard to patients with diverse needs and preferences. Special attention should be given to feasibility concerns voiced by clinicians.