Cognitive testing of PAINReportIt in adult African Americans with sickle cell disease.
Cognitive testing of PAINReportIt in adult African Americans with sickle cell disease.
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DOI：
10.1097/ncn.0b013e3181d7820b
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发表时间：
2010-05
期刊：
影响因子：
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通讯作者：
Wilkie DJ
中科院分区：
文献类型：
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作者：
Jha A;Suarez ML;Ferrans CE;Molokie R;Kim YO;Wilkie DJ
PAINReportIt® 是梅尔扎克 (© 1970) 麦吉尔疼痛问卷的计算机化版本，在带有弹出屏幕的串行显示屏中向响应者提供疼痛测量项目。在这项研究中，我们使用认知访谈来检验 PAINReportIt® 对 25 名患有镰状细胞病的非裔美国人的进一步有效性。具体目的是确定 PAINReportIt® 计划中的问题是否与患有 SCD 的非裔美国人相关并能被其理解，并描述他们所经历的疼痛的性质。大多数研究参与者都很热情，并且能够按预期使用该工具，欣赏其疼痛数据的全面性、细节性和多维性。对于某些屏幕，两到六名参与者的回答表明存在一些问题理解和解释问题、无法检索所需信息或技术问题。他们的反应表明，屏幕对于一生中反复出现的疼痛的时间性质缺乏足够的特异性。该项目捕捉了镰状细胞疼痛的伤害性和神经性方面，并提供了参与者所经历的疼痛的位置、强度、质量和模式的详细信息。我们建议对 PAINReportIt® 程序的未来修订解决测量复发性疼痛的时间问题，解决与弹出窗口相关的技术问题，并简化困难的单词以更好地匹配患者的典型健康素养水平。这些修订可以进一步增强该工具对患有 SCD 的非裔美国人的技术方面、可用性和文化适应性。
PAINReportIt,® a computerized version of Melzack’s (© 1970) McGill Pain Questionnaire, presents pain measurement items to responders in serial display screens accompanied by pop-up screens. In this study, we used cognitive interviews to examine further validity of PAINReportIt® with 25 African Americans with sickle cell disease. The specific aims were to determine if the questions in the PAINReportIt® program were relevant to and understood by African Americans with SCD and to describe the nature of the pain they experienced. Most study participants were enthusiastic and able to use the tool as intended, appreciated the comprehensiveness, detail, and multidimensionality of its pain data. For some screens, two to six participants’ responses suggested some question understanding and interpretation issues, inability to retrieve the requested information, or technical issues. Their responses indicated that screens lacked sufficient specificity for the temporal nature of pain recurrent over a lifetime. The program captured both nociceptive and neuropathic aspects of sickle cell pain, and provided detailed information on the location, intensity, quality and pattern of pain experienced by participants. We recommend that future revisions to the PAINReportIt® program address the temporal issues of measuring recurrent pain, resolve technological issues related to pop-ups, and simplify difficult words to better match the typical health literacy levels of patients. These revisions could further enhance the technological aspects, usability, and cultural appropriateness of the tool for African Americans with SCD.