Introduction: Bioethics and intellectual disability--scientific promise, social context and policy.
Introduction: Bioethics and intellectual disability--scientific promise, social context and policy.
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简介：生物伦理学和智力障碍——科学承诺、社会背景和政策。
DOI：
10.1002/ddrr.130
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发表时间：
2011
影响因子：
--
通讯作者：
Msall,MichaelE
中科院分区：
文献类型：
--
作者：
Acharya,Kruti;Msall,MichaelE
'2012 Wiley Periodicals，Inc.产前和产后残疾的观点之间的联系，以及专业筛查指南如何加强这些误解。她强调了新的诊断技术（即比较基因组杂交）在产前检测更微妙的基因组异常方面的潜在影响。Vander Ploeg Booth使用生物心理社会模型扩展了这一重点，评估了残疾人一生中医疗保健的差异。尽管社区进步改善了唐氏综合征儿童和青少年的健康状况，但Yang及其同事发现，唐氏综合征的预期寿命延长并不适用于多样化的美国人口[Yang et al.，2002年]。特别是，患有唐氏综合症的非洲裔美国人和拉丁裔人的预期寿命较短，大多数人无法在年轻时存活下来。这是否反映了获得初级和专科医疗保健或基本社区资源的机会较少，尚不清楚。然而，这些智力残疾的健康差距的程度使其成为一个高度优先领域的关键研究和程序development.We的第三个原则，从克罗克得出结论：“支持性医疗保健服务应最大限度地不引人注目，应庆祝健康的存在，并期待以及支持个人幸福的状态”[克罗克，1987年]。支助性保健服务不仅限于医疗保健，还包括全面的教育、
'2012 Wiley Periodicals, Inc. ancies between prenatal and postnatal perspectives of disability and how professional screening guidelines may reinforce these misperceptions. She highlights the potential impact of newer diagnostic techniques (ie comparative genomic hybridization) to prenatally detect more subtle genomic abnormalities. Using a biopsychosocial model, Vander Ploeg Booth extends this focus, evaluating disparities in health care across the lifespan for individuals with disabilities. Even though community advances have improved the health outcome of children and adolescents with Down syndrome, Yang and colleagues found that increased life expectancy in Down syndrome did not hold across the diverse US population [Yang et al., 2002]. In particular, individuals with Down syndrome of African–American and Latino descent had shorter life expectancies with most not surviving young adulthood. Whether this reflects poorer access to primary and specialty medical care or to basic community resources is not known. However, the extent of these health disparities in intellectual disability make it a high priority area for critical study and program development.We conclude with a third principle from Crocker:‘‘Supportive health care services shall be maximally unobtrusive, shall celebrate the presence of wellness and look as well to buttressing the state of personal happiness’’[Crocker, 1987]. Supportive health services are not limited to medical care, but also encompass comprehensive edu-