Barriers to Treatment Adherence for Pediatric Patients With Sickle Cell Disease and Their Families
Barriers to Treatment Adherence for Pediatric Patients With Sickle Cell Disease and Their Families
复制标题
DOI：
10.1080/02739610902813245
复制
发表时间：
2009-01-01
影响因子：
0.9
通讯作者：
Mitchell, Monica J.
中科院分区：
文献类型：
--
作者：
Modi, Avani C.;Crosby, Lori E.;Mitchell, Monica J.
本研究系统地确定了31名青少年镰状细胞病（SCD）和71名照顾者的依从性障碍和策略。定性数据表明，遗忘是主要的障碍和照顾者提醒的主要策略确定的照顾者和青少年。然而，青少年报告的疼痛管理障碍（p 0.01）明显多于其照顾者。照顾者和青少年似乎经历了类似的，以及一些独特的障碍和策略，在SCD治疗方案的多个组成部分。多学科治疗团队有机会促进与患者及其家属就依从性障碍和策略进行对话。
This study systematically identified adherence barriers and strategies in 31 adolescents with sickle cell disease (SCD) and 71 caregivers. Qualitative data indicated that forgetting was the primary barrier and caregiver reminders were the primary strategies identified by both caregivers and adolescents. However, adolescents reported significantly more barriers for pain management (p .01) than their caregivers. Caregivers and adolescents seem to experience similar as well as a few unique barriers and strategies across multiple components of the SCD treatment regimen. Multidisciplinary treatment teams have the opportunity to facilitate dialogue with patients and their families about adherence barriers and strategies.