Beyond treatment - Psychosocial and behavioural issues in cancer survivorship research and practice.
Beyond treatment - Psychosocial and behavioural issues in cancer survivorship research and practice.
复制标题
DOI：
10.1016/j.ejcsup.2014.03.005
复制
发表时间：
2014-06
期刊：
影响因子：
--
通讯作者：
van de Poll-Franse, Lonneke V
中科院分区：
文献类型：
--
作者：
Aaronson, Neil K;Mattioli, Vittorio;Minton, Ollie;Weis, Joachim;Johansen, Christoffer;Dalton, Susanne O;Verdonck-de Leeuw, Irma M;Stein, Kevin D;Alfano, Catherine M;Mehnert, Anja;de Boer, Angela;van de Poll-Franse, Lonneke V
癌症幸存者的人口在过去几十年中稳步增长。然而，癌症的幸存并不意味着没有与疾病及其治疗相关的问题。在本文中，我们提供了一个简短的概述，选定的身体和心理健康问题普遍存在于癌症幸存者，即疼痛，疲劳，心理困扰和工作参与。我们还解决围绕癌症幸存者的自我管理和电子健康干预措施的问题，以及鼓励幸存者采取更健康生活方式的计划。最后，我们讨论了评估癌症幸存者健康相关生活质量的方法，以及癌症登记处在进行社会心理生存研究中的应用。我们强调在每个这些领域的研究和实践的优先事项。虽然每个主题的优先级不同，但出现的共同主题包括：（1）不应孤立地看待症状，而应将其视为一组相互关联的症状的一部分。这对理解症状的病因及其治疗都有影响;（2）心理社会干预需要以证据为基础，并在可能的情况下，应根据癌症幸存者的需要量身定制。具有自我管理和电子保健要素的成本相对较低的干预措施可能适合大多数幸存者，而资源密集型干预措施则留给最需要的人;（3）应更加努力在实践中传播和实施干预措施，并评估其成本效益;（4）应更多地关注幸存者中弱势和高风险群体的需求，包括社会经济弱势群体和老年人。
The population of cancer survivors has grown steadily over the past several decades. Surviving cancer, however, is not synonymous with a life free of problems related to the disease and its treatment. In this paper we provide a brief overview of selected physical and psychosocial health problems prevalent among cancer survivors, namely pain, fatigue, psychological distress and work participation. We also address issues surrounding self-management and e-Health interventions for cancer survivors, and programmes to encourage survivors to adopt healthier lifestyles. Finally, we discuss approaches to assessing health-related quality of life in cancer survivors, and the use of cancer registries in conducting psychosocial survivorship research. We highlight research and practice priorities in each of these areas. While the priorities vary per topic, common themes that emerged included: (1) Symptoms should not be viewed in isolation, but rather as part of a cluster of interrelated symptoms. This has implications for both understanding the aetiology of symptoms and for their treatment; (2) Psychosocial interventions need to be evidence-based, and where possible should be tailored to the needs of the individual cancer survivor. Relatively low cost interventions with self-management and e-Health elements may be appropriate for the majority of survivors, with resource intensive interventions being reserved for those most in need; (3) More effort should be devoted to disseminating and implementing interventions in practice, and to evaluating their cost-effectiveness; and (4) Greater attention should be paid to the needs of vulnerable and high-risk populations of survivors, including the socioeconomically disadvantaged and the elderly.