The Financial and Emotional Impact of Atopic Dermatitis on Children and Their Families
The Financial and Emotional Impact of Atopic Dermatitis on Children and Their Families
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DOI：
10.1016/j.jpeds.2015.10.077
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发表时间：
2016-02-01
影响因子：
5.1
通讯作者：
Nedorost, Susan T.
中科院分区：
文献类型：
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作者：
Filanovsky, Michelle G.;Pootongkam, Suwimon;Nedorost, Susan T.
目的探讨特应性皮炎（AD）对个人财务的影响，并试图将AD的成本与情绪影响联系起来。研究设计在2011年3月至2013年12月期间，在俄亥俄州克利夫兰的皮肤科诊所就诊时，招募了82名6个月至12岁患有中重度AD的儿童的护理人员来完成调查。有效率为95%。参与者被问及在过去4周内与AD相关的直接费用（医疗访问，药物和其他产品）和间接费用（工作时间，托儿费用）。情绪影响用儿童特应性皮炎影响量表测量。结果就诊前一个月AD的平均每月个人费用为274美元（中位数为114美元；IQR为29美元，276美元），其中直接费用为75美元（中位数为45美元；IQR为20美元，110美元），间接费用为199美元（中位数为0美元；IQR为0美元，208美元）。在就诊前一个月，每月平均有34.8%的可用资金用于阿尔茨海默病治疗。对于接受医疗补助的患者，每月调整后的个人医疗费用与儿童特应性皮炎影响量表评分存在显著相关（r = 0.548; P < 0.001）；然而，有商业保险的患者不存在这种相关性（r = 0.269; P = 0.166）。我们的研究结果说明了儿童AD的高情绪和经济负担，并提供了对消费模式的见解。此外，我们的研究将成本与低收入阿尔茨海默病患者的情绪负担联系起来。
Objective To examine the personal financial impact of atopic dermatitis (AD) and attempt to correlate cost of AD with emotional impact.Study design Between March 2011 and December 2013, 82 caretakers of children 6 months to 12 years of age with moderate-to-severe AD were recruited at the time of dermatology clinic visits in Cleveland, Ohio, to complete surveys. The response rate was >95%. Participants were asked questions about direct expenses (medical visits, medications, and other products) and indirect expenses (time missed from work, childcare costs) related to AD in the past 4 weeks. Emotional impact was measured by the Childhood Atopic Dermatitis Impact Scale.Results The mean monthly personal cost of AD in the month before the office visit was $274 (median $114; IQR $29, $276), with $75 from direct costs (median $45; IQR $20, $110) and $199 from indirect costs (median $0; IQR $0, $208). An average of 34.8% of available monthly money was spent on AD care in the month before the office visit. For patients with Medicaid, there was a significant correlation between monthly adjusted personal cost and Childhood Atopic Dermatitis Impact Scale score (r = 0.548; P < .001); however, this correlation did not exist for patients who had commercial insurance (r = 0.269; P = .166).Conclusions Our results illustrate the high emotional and financial burden of childhood AD and provide insight into spending patterns. In addition, our study correlate costs with emotional burden of AD for lower-income patients.