How satisfied are head and neck cancer (HNC) patients with the information they receive pre-treatment? Results from the satisfaction with cancer information profile (SCIP)
How satisfied are head and neck cancer (HNC) patients with the information they receive pre-treatment? Results from the satisfaction with cancer information profile (SCIP)
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DOI：
10.1016/j.oraloncology.2005.11.013
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发表时间：
2006-08-01
期刊：
影响因子：
4.8
通讯作者：
Weinman, J.
中科院分区：
文献类型：
--
作者：
Llewellyn, C. D.;McGurk, M.;Weinman, J.
英国政府最近的建议指出，必须为癌症患者提供高质量的信息。本研究的目的首先是探讨头颈癌患者对所提供的疾病及治疗资讯的满意度，以找出可改善的地方。其次，评估治疗前对信息的满意度对长期结果的预测程度。治疗前(82例)、治疗结束后1个月(68例)、治疗后6~8个月(50例)分别完成信息满意度评定量表(SCIP)、医院焦虑抑郁量表(HADS)和SF-12健康调查问卷(SF-12V2)。患者总体上对信息感到满意，但确定了改善的关键领域，例如提供关于支持小组的信息、向哪里寻求财务建议以及治疗对工作能力、身体功能和生活质量的长期影响。治疗前对信息的满意度是治疗结束后6-8个月抑郁和精神成分综合评分(HR-QOL)的预测指标。这项研究强调了提供量身定制的信息的必要性，以及在治疗前满足患者对信息的需求对纵向结果的影响。(C)2005爱思唯尔有限公司。保留所有权利。
Recent UK government recommendations state that high quality information must be provided for cancer patients. The objectives of this study were firstly, to explore how satisfied head and neck cancer (HNC) patients were with information provided about their illness and treatment, in order to identify areas of improvement. Secondly, to assess the extent to which satisfaction with information before treatment was predictive of long-term outcomes. Patients completed the satisfaction with information profile (SCIP), the Hospital Anxiety and Depression Scale (HADS) and the SF-12 Health Survey (SF-12v2) before treatment (n = 82), 1 month after the end of treatment (n = 68) and 6-8 months later (n = 50). Patients were generally satisfied with information, however key areas of improvement were identified, such as the provision of information about support groups, where to go for financial advice and the long-term affects of treatment on ability to work, physical functioning and QoL. Satisfaction with information before treatment was predictive of depression and Mental Component Summary scores (HR-QoL) 6-8 months after the end of treatment. This study highlights the need for tailored information provision and the impact on longitudinal outcomes of satisfying patient's needs for information prior to treatment. (c) 2005 Elsevier Ltd. All rights reserved.