Health-related quality of life for infants in the neonatal intensive care unit
Health-related quality of life for infants in the neonatal intensive care unit
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DOI：
10.1038/jp.2012.82
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发表时间：
2012-12-01
影响因子：
2.9
通讯作者：
Donohue, P. K.
中科院分区：
文献类型：
--
作者：
Boss, R. D.;Kinsman, H. I.;Donohue, P. K.
在讨论危重婴儿医疗干预的益处和负担时，临床医生和家庭面临的挑战是权衡治疗成功与婴儿疼痛和痛苦的不确定性。缺乏可为婴儿护理和决策提供信息的有关婴儿痛苦或生活质量的具体措施。虽然一致和可靠的健康相关的生活质量（HRQOL）的定义和措施已被广泛开发的成人和年龄较大的儿童，他们还没有相关的新生儿或婴儿。推进HRQOL研究方法是《健康人2020》的一个目标。本文将审查有关HRQOL的证据和做法，重点是重症监护和儿科环境。我们将强调现有的HRQOL措施，这可能是适应新生儿和现有的新生儿重症监护病房的措施和做法，这可能会通知新的HRQOL措施。Journal of Perinatology（2012）32，901-906; doi：10.1038/jp.2012.82; 2012年6月28日在线发表
When discussing the benefits and burdens of medical interventions for critically ill infants, clinicians and families are challenged to weigh the uncertainties of treatment success with infant pain and suffering. Concrete measures of infant suffering or quality of life, which could inform infant care and decision-making are lacking. Although consistent and reliable health-related quality of life (HRQOL) definitions and measures have been extensively developed for adults and older children, they have not been relevant to neonates or infants. Advancing HRQOL research methodology is an objective of Healthy People 2020. This paper will review the evidence and practices relevant to HRQOL with a focus on intensive care and pediatric settings. We will highlight existing HRQOL measures, which could be adapted for neonates and existing neonatal intensive care unit measures and practices, which could inform new measures of HRQOL. Journal of Perinatology (2012) 32, 901-906; doi:10.1038/jp.2012.82; published online 28 June 2012