A Conceptual Model to Promote the Retention of Women with Physical Disabilities in Research.

A Conceptual Model to Promote the Retention of Women with Physical Disabilities in Research.
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DOI:
10.1111/phn.12192
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发表时间:
2015-07
期刊:
Public health nursing (Boston, Mass.)
影响因子:
--
通讯作者:
McNeff E
McNeff E
中科院分区:
其他
文献类型:
--
作者:
Mood L;Hassouneh D;McNeff E

文献摘要

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不充分的参与者招募和保留做法会影响样本的代表性,从而影响研究结果的概括性。在某种程度上,文献对保留研究参与者进行了审查;然而,对于实现可接受结果的最佳做法,没有达成共识。此外,在理解如何吸引和留住肢体残疾妇女(WPD)参与研究方面存在差距。为了解决这些疏漏,我们回顾了(1)保留作为一种方法论问题的重要性,(2)影响参与者参与和保留研究的因素,包括个人、人口和健康疾病考虑,以及(3)影响研究中纳入和保留WPD的特殊情况。基于文献回顾和我们在康复路径随机对照试验(RCT)中的经验,我们提出了一个概念模型来指导WPD实施文化敏感的健康研究,并促进这一群体参与和保留RCT和其他形式的干预性健康研究。
Inadequate participant recruitment and retention practices can affect sample representativeness and thus the generalizability of research findings. Retention of research participants has been examined within the literature to some extent; however, there is no consensus on best practice in achieving acceptable results. Furthermore, there is a gap in understanding how to engage and retain women with physical disabilities (WPDs) in research. To address these oversights, we review (1) the significance of retention as a methodologic concern, (2) factors that influence the involvement and retention of participants in research, including individual, population, and health-illness considerations, and (3) particular circumstances impacting the inclusion and retention of WPDs in research. Based on a review of the literature and our experience with the Healing Pathways randomized-controlled trial (RCT), we present a conceptual model to guide culturally-sensitive health research implementation with WPDs, and promote the engagement and retention of this group in RCTs and other forms of interventional health research.