Cancer patients' information needs and information seeking behaviour: in depth interview study
Cancer patients' information needs and information seeking behaviour: in depth interview study
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DOI：
10.1136/bmj.320.7239.909
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发表时间：
2000-04-01
影响因子：
105.7
通讯作者：
McPherson, K
中科院分区：
文献类型：
--
作者：
Leydon, GM;Boulton, M;McPherson, K
目的探讨癌症患者在患病期间，除了医生主动提供的信息外，为什么他们不想或不想寻求有关自己病情的信息。深度访谈。设置在伦敦癌症中心的门诊肿瘤诊所。参与者17名在过去6个月内诊断为癌症的患者。主要结果测量分析患者叙述以确定关键主题和类别。结果病人希望得到诊断和治疗的基本信息，但并非所有人都希望得到疾病各个阶段的进一步信息。三个首要的态度，他们的管理取消限制病人的愿望和随后的努力，以获得进一步的信息：信仰，希望和慈善：信仰他们的医生的医疗专业知识排除了需要病人自己寻求进一步的信息。希望对于病人继续正常生活至关重要，可以通过沉默和避免信息，特别是过于详细或“不安全”的信息来维持。慈善同胞患者，特别是那些被视为比自己更需要，表示在认识到，稀缺的资源，包括信息和咨询，必须共享，并意味着有限的信息被接受为inevitable.Conclusions癌症患者的态度癌症。在制定建议时，政府的癌症信息策略应注意患者对信息的需求变化及其原因。
Objectives To explore why cancer patients do riot want or seek information about their condition beyond that volunteered by their physicians at times during their illness.Design Qualitative study based on in-depth interviews.Setting Outpatient oncology clinics at a London cancer centre.Participants 17 patients with cancer diagnosed in previous 6 months.Main outcome measures Analysis of patients narratives to identify key themes and categories.Results While all patients wanted basic information on diagnosis and treatment, not all wanted further information at all stages of their illness. Three overarching attitudes to their management of cancel limited patients' desire for and subsequent efforts to obtain further information: faith, hope, and charity: Faith in their doctor's medical expertise precluded the need for patients to seek further information themselves. Hope was essential for patients to carry on with life as normal and could be maintained through silence and avoiding information, especially too detailed or "unsafe" information. Charity to fellow patients, especially those seen as more needy than themselves, was expressed in the recognition that scarce resources-including information and explanations-had to be shared and meant that limited Information was accepted as inevitable.Conclusions Cancer patients' attitudes to cancer. and their strategies for coping with their illness can constrain their wish for information and their, efforts to obtain it. In developing recommendations, the government's cancer information strategy should attend to variations in patients' desires for information and the reasons for them.