A qualitative study identifying the knowledge, attitudes and behaviours of young men with mild haemophilia
A qualitative study identifying the knowledge, attitudes and behaviours of young men with mild haemophilia
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DOI：
10.1111/j.1365-2516.2011.02714.x
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发表时间：
2012-05-01
期刊：
影响因子：
3.9
通讯作者：
Jarock, C.
中科院分区：
文献类型：
--
作者：
Nilson, J.;Schachter, C.;Jarock, C.
.加拿大血友病护理物理治疗师（CPHC）试图了解患有轻度血友病的年轻男性成年人对其病情和护理的态度和行为。半结构化的面对面或电话采访了18名来自加拿大各地的年轻男子。本报告总结了参与者对血友病的态度，以前的伤害，寻求治疗的感知障碍，以及他们自我评估伤害时的决策过程。访谈表明，年轻人和医疗保健团队之间的沟通并不是最佳的，通常提到讲座式教育的无效性。在出血识别和管理方面也出现了知识差距。
. The Canadian Physiotherapists in Hemophilia Care (CPHC) sought to learn about attitudes and behaviours of young male adults with mild haemophilia towards their condition and care. Semi-structured in-person or telephone interviews were conducted with 18 young men from and across Canada. This report summarizes the participants attitudes towards their haemophilia, previous injuries, perceived barriers to seeking treatment, as well as their decision-making process when self-assessing injury. The interviews demonstrated that communication between the young adults and the health care team was not optimal, with common reference to the ineffectiveness of lecture style education. Gaps in knowledge also emerged regarding bleed identification and management.