The psychosocial needs of underserved breast cancer survivors and perspectives of their clinicians and support providers.
The psychosocial needs of underserved breast cancer survivors and perspectives of their clinicians and support providers.
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DOI：
10.1007/s00520-021-06286-7
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发表时间：
2022-01
期刊：
影响因子：
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通讯作者：
Quinn GP
中科院分区：
文献类型：
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作者：
Wells KJ;Drizin JH;Ustjanauskas AE;Vázquez-Otero C;Pan-Weisz TM;Ung D;Carrizosa C;Laronga C;Roetzheim RG;Johnson K;Norton M;Aguilar RC;Quinn GP
乳腺癌幸存者(BRCs)在接受治疗后经历了许多心理社会困难，导致与普通人群相比，心理痛苦的风险增加。对于服务不足的BRC来说尤其如此，他们的支持性护理需求得不到满足，可能会导致更糟糕的身心健康结果。这项定性研究比较了卫生保健和支持提供者对BRCS需求的认知和幸存者对其自身需求的认知。通过有目的的抽样，对25个未得到充分服务的乳腺癌患者和20个癌症存活者进行了半结构化的深度访谈。使用恒定比较法和内容分析法，通过编码和讨论的迭代过程对数据进行分析。数据根据利益相关者和幸存者提到的三个中间和近端主题进行总结：1)癌症幸存者的心理社会需求；2)支持；3)受益发现/对癌症的积极感受。人口学数据通过计算描述性统计进行分析。提供者和幸存者对治疗后情绪变化、经济负担、家庭压力和身体变化的看法是一致的。提供者和幸存者对BRCs首选的护理和支持来源的看法不同，癌症治疗对身体形象的影响，对癌症复发的恐惧对后续护理的影响，以及受益发现。这项研究对卫生保健和支持提供者的认知可能与服务不足的BRCs的生活体验不同的领域提供了有价值的见解。这项研究的结果可用于制定干预措施，并告知卫生保健和支持提供者如何向服务不足的BRCs提供高质量的护理。
Breast cancer survivors (BrCS) experience many psychosocial difficulties following treatment, leading to an increased risk of psychological distress compared to the general population. This is especially true for underserved BrCS whose unmet supportive care needs can result in worse physical and mental health outcomes. This qualitative study compared health care and support providers’ perceptions of BrCS’ needs to survivors’ perceptions of their own needs. Semi-structured in-depth interviews were conducted with 25 underserved BrCS and 20 cancer survivorship stakeholders identified using purposeful sampling. Using the constant comparison method and content analysis, data were analyzed via an iterative process of coding and discussion. Data were summarized according to three intermediate and proximal themes mentioned by both stakeholders and survivors: 1) psychosocial needs of cancer survivors; 2) support; and 3) benefit finding/positive feelings about cancer. Demographic data were analyzed by calculating descriptive statistics. There was consistency in providers’ and survivors’ perceptions of post-treatment mood changes, financial burden, familial stress, and physical changes. Providers and survivors differed in perceptions of BrCS’ preferred sources of care and support, effects of cancer treatment on body image, the effects of fear of cancer recurrence on follow-up care, and benefit finding. This study provides valuable insight into areas in which health care and support providers’ perceptions may differ from underserved BrCS’ lived experiences. Results from this study can be used to develop interventions and inform health care and support providers on how to provide high quality care to underserved BrCS.