Work participation and work transition in patients with systemic sclerosis: a cross-sectional study
Work participation and work transition in patients with systemic sclerosis: a cross-sectional study
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DOI：
10.1093/rheumatology/ker288
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发表时间：
2012-02-01
期刊：
影响因子：
5.5
通讯作者：
De Keyser, Filip
中科院分区：
文献类型：
--
作者：
Decuman, Saskia;Smith, Vanessa;De Keyser, Filip
目标.描述SSc患者的工作参与和因健康原因的工作转换。协会之间进行了评估工作过渡或没有和可能影响这种过渡的因素。这项研究包括在根特大学医院硬皮病诊所就诊的患者，他们定期接受广泛的评估。本研究采用问卷调查的方法收集工作参与和工作转换的数据。纳入了84例成年工作年龄人群患者。84例患者中有38例（45%）参加了劳动力。84名患者中有46名（55%）没有从事有报酬的工作; 46名患者中有34名（74%）是由于健康问题。84例患者中有76例（90%）进行了工作转换。76人中有47人（62%）由于健康原因而进行了过渡。将与健康相关的工作转换组（47/84，56%）与未进行工作转换或因健康以外的原因进行工作转换的其余组（37/84，44%）进行比较。两组在教育水平、皮肤评分、肺部疾病严重程度、疾病活动度、疾病持续时间、硬皮病健康评估问卷（sHAQ）、RP视觉模拟评分（VAS）、肠道疾病VAS、总体疾病VAS、疼痛VAS、SF-36、工作章程和参加培训的意愿方面存在显著差异。多因素分析保留sHAQ、SF-36和病程作为关联变量。SSc患者的工作参与有限，大多数人因为健康问题而进行工作过渡。人口、疾病和工作相关变量以及参加培训的意愿与工作过渡（发生）有关。
Objectives. To describe work participation and work transition due to health in patients with SSc. Associations are assessed between having made a work transition or not and factors possibly influencing that transition.Methods. This study included patients visiting the Scleroderma Clinic of the Ghent University Hospital, who regularly undergo an extensive evaluation. For this study, a questionnaire was used to collect work participation and work transition data.Results. Eighty-four patients in the adult working-age population were included. Thirty-eight (45%) out of 84 patients participated in the labour force. Forty-six (55%) out of 84 were not engaged in a paid job; in 34 (74%) out of 46 patients this was attributed to health issues. Seventy-six (90%) out of 84 patients made a work transition. Forty-seven (62%) out of 76 made that transition due to health reasons. The group that made a health-related work transition (47/84, 56%) was compared with the remaining group (37/84, 44%) that made no work transition or a work transition for reasons other than health. There was a significant difference in educational level, skin score, lung disease severity, disease activity, disease duration, scleroderma Health Assessment Questionnaire (sHAQ), visual analogue scale (VAS) for RP, VAS for intestinal disease, VAS for overall disease, VAS for pain, Medical Outcomes Study short form 36 (SF-36), work statute and willingness to participate in training. The multivariate analysis retained sHAQ, SF-36 and disease duration as associating variables.Conclusions. Work participation is limited in patients with SSc and a majority make a work transition because of health problems. Demographic, disease- and work-related variables, as well as willingness to participate in training are associated with (the occurrence of) work transition.