Patient Perceptions of Gout Management Goals A Cross-sectional Internet Survey
Patient Perceptions of Gout Management Goals A Cross-sectional Internet Survey
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DOI：
10.1097/rhu.0000000000000981
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发表时间：
2020-06-01
影响因子：
3.4
通讯作者：
Edwards, N. Lawrence
中科院分区：
文献类型：
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作者：
Singh, Jasvinder A.;Edwards, N. Lawrence
目的评价患者对痛风管理目标的认知。方法我们对访问痛风和尿酸教育协会网站的人进行了横断面互联网调查，以评估患者/应答者对痛风治疗目标的看法。分类检验采用卡方检验，连续变量采用t检验。结果在320名被医生诊断为痛风的调查对象中，平均年龄57岁(SD，13.4岁)，男性72%，白人77%；痛风病程平均7.6年(SD，11)，最近一年痛风发作5.2(SD，6.1)，常见内科合并症2.7(SD，2.6)。三分之二的受访者都报告了痛风的非常严重或严重的症状，痛风是对生活质量产生负面影响的两大健康状况之一。在一次诊所就诊期间，只有三分之一的受访者医生花了50%以上的时间讨论痛风的治疗。只有54%的受访者是由他们的医疗保健提供者开出的成人处方。根据患者的喜好，最好的终生痛风治疗策略是降低血清尿酸水平和控制痛风症状(62%)，其次是降低血清尿酸(32%)。受访者认为，要使痛风治疗满意，最重要的是以下几点：(1)患者教育；(2)有效的医患沟通；(3)饮食和生活方式的改变；(4)血尿酸监测和目标实现；(5)疼痛管理和红肿预防；以及(6)药物管理。结论将痛风症状控制和血尿酸水平监测作为痛风患者最重要的治疗目标，对临床医生和指南制定者具有重要的参考价值。
Objective To assess patient perceptions of gout management goals. Methods We conducted a cross-sectional Internet survey of people who visited the Gout and Uric Acid Education Society's website to assess patient/respondent perception of gout management goals. We used chi-square test for categorical or t-test for continuous variables. Results Among the 320 survey respondents with physician-diagnosed gout, mean age was 57 (SD, 13.4) years, 72% were male, 77% White; mean gout duration was 7.6 years (SD, 11), gout flares in the last year were 5.2 (SD, 6.1), and medical comorbidities were common, 2.7 (SD, 2.6). Two-thirds respondents each reported very severe or severe symptoms from gout and that gout ranked among the top two health conditions with a negative impact on quality of life. During a clinic visit, only one-third of respondents' physicians spent 50% of more of the time discussing gout treatment. Only 54% respondents were prescribed ULT by their healthcare provider. By patient preference, the best life-long gout treatment strategies were the lowering of the serum urate level and the control of gout symptoms (62%) followed by serum urate lowering (32%). Respondents considered the following as the most important things for making gout treatment satisfactory: (1) patient education; (2) effective physician-patient communication; (3) diet and lifestyle modification; (4) serum urate monitoring and target achievement; (5) pain management and flare prevention; and (6) medication management. Conclusions Patient identification of gout symptom control and serum urate level monitoring as the most important treatment goals is informative for clinicians and guideline developers.