International Spinal Cord Injury Data Sets

International Spinal Cord Injury Data Sets
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DOI:
10.1038/sj.sc.3101930
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发表时间:
2006-09-01
期刊:
影响因子:
2.2
通讯作者:
Wing, P.
Wing, P.
中科院分区:
医学3区
文献类型:
--
作者:
Biering-Sorensen, F.;Charlifue, S.;Wing, P.

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研究设计:讨论并形成最终共识。目的:介绍国际脊髓损伤(SCI)数据集开发的背景、目的和过程。背景:国际。方法:2002年5月2日,在加拿大不列颠哥伦比亚省温哥华举行的美国脊髓损伤协会(ASIA)和国际脊髓学会(ISCoS)联合会议之前,在一个研讨会上召开了一个关于SCI数据收集和分析的国际会议。在这次会议上,制定了一个程序,用于选择将被纳入国际SCI数据集的数据元素。结果:按照国际功能、残疾和健康分类(ICF)的格式制定了总体结构和术语。这包括核心数据集的定义,以及具有基本问题或数据集和扩展数据集的模块。核心数据集已经开发完成,并将单独提出。正在设立额外模块的工作组,以及模块开发的一般准则。结论:提出的格式应该有助于在与SCI相关的各种主题中开发数据集和模块。
Study design: Discussion and development of final consensus.Objective: Present the background, purpose, and process for the International Spinal Cord Injury (SCI) Data Sets development.Setting: International.Methods: An international meeting on SCI data collection and analysis occurred at a workshop on May 2, 2002, before the combined meeting of the American Spinal Injury Association (ASIA) and the International Spinal Cord Society (ISCoS) in Vancouver, British Columbia, Canada. At this meeting, a process was developed for selection of data elements to be included in International SCI Data Sets.Results: An overall structure and terminology has been developed following the format of the International Classification of Functioning, Disability and Health (ICF). This includes definitions of the Core Data Set, as well as Modules with Basic Questions or Data Sets and Expanded Data Sets. The Core Data Set has been developed and will be presented separately. Working groups for additional modules are being established as well as general guidelines for the development of the modules.Conclusion: The presented format should help in developing data sets and modules within various topics related to SCI.