The influence of experiential knowledge on prenatal screening and testing decisions

The influence of experiential knowledge on prenatal screening and testing decisions
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DOI:
10.1089/gte.2007.0057
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发表时间:
2008-03-01
期刊:
GENETIC TESTING
影响因子:
--
通讯作者:
Wilson, Brenda
Wilson, Brenda
中科院分区:
其他
文献类型:
--
作者:
Etchegary, Holly;Potter, Beth;Wilson, Brenda

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最低限度的研究侧重于产前筛查和检测方面的决策过程。本文概述了一个重要的上下文对这些决定的影响。具体来说,我们建议,经验知识,特别是关于怀孕,筛查和残疾,有显着的影响产前筛查和检测的决定。利用38个半结构化的妇女访谈,本研究探讨了妇女如何进行产前筛查和检测的决定。定性数据分析揭示了两种类型的经验知识,移情和体现,发挥了关键作用,在妇女的思想产前检查的价值,他们是否接受提供的筛查,检测,或两者兼而有之。我们的结论是,产前遗传咨询可以受益于探索客户的经验知识,无论是移情和体现形式。
Minimal research focuses on the process of decision making in the context of prenatal screening and testing. This paper outlines an important contextual influence on these decisions. Specifically, we propose that experiential knowledge, particularly about pregnancy, screening, and disability, has a significant influence on prenatal screening and testing decisions. Drawing upon 38 semistructured interviews with women, this study explored how women made prenatal screening and testing decisions. Qualitative data analysis revealed two types of experiential knowledge, empathetic and embodied, which played a pivotal role in women's thinking about the value of prenatal tests and whether or not they accepted the offer of screening, testing, or both. We conclude that prenatal genetic counseling could benefit from an exploration of clients' experiential knowledge, both empathetic and embodied forms.