Doing the right thing: genetic risk and responsibility
Doing the right thing: genetic risk and responsibility
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DOI：
10.1111/1467-9566.00175
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发表时间：
1999-09-01
影响因子：
2.9
通讯作者：
Hallowell, N
中科院分区：
文献类型：
--
作者：
Hallowell, N
本文报告了对接受遗传性乳腺癌/卵巢癌 (HBOC) 遗传咨询的女性 (n = 40) 进行的访谈研究的结果。分析表明，去遗传学诊所就诊的女性认为自己对亲属（过去、现在和后代）负有责任，确定自己的风险程度以及其他家庭成员面临的风险，并通过参与某种形式的风险管理来根据这些信息采取行动。据观察，在承认她们对亲属的遗传责任时，这些妇女不仅放弃了不了解自己风险的权利，而且还承诺采取可能产生医源性后果的风险管理做法。有人认为，将遗传风险构建为道德问题可以被视为限制了接受遗传咨询的女性的选择。
This paper reports the findings of an interview study of women (n = 40) attending genetic counselling for hereditary breast/ovarian cancer (HBOC). The analysis indicates that women who attend genetics clinics perceive themselves as having a responsibility to their kin (past, present and future generations) to establish the magnitude of their risk and the risks to other family members, and to act upon this information by engaging in some form of risk management. It is observed that in acknowledging their genetic responsibility for their kin these women not only relinquished their right not to know about their risks, but also committed themselves to undertaking risk management practices which may have iatrogenic consequences. It is argued that the construction of genetic risk as a moral issue can be seen as limiting the choices which are available to women who attend genetic counselling.