Determinants of Trustworthiness to Conduct Medical Research: Findings from Focus Groups Conducted with Racially and Ethnically Diverse Adults
Determinants of Trustworthiness to Conduct Medical Research: Findings from Focus Groups Conducted with Racially and Ethnically Diverse Adults
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DOI：
10.1007/s11606-020-05868-1
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发表时间：
2020-06-03
影响因子：
5.7
通讯作者：
Wilkins, Consuelo H.
中科院分区：
文献类型：
--
作者：
Griffith, Derek M.;Jaeger, Emily Cornish;Wilkins, Consuelo H.
潜在的研究参与者，特别是那些来自医学研究中代表性不足的种族和民族群体的参与者，通常会根据他们如何判断人，地点和研究方案是否值得信赖来决定参与。然而，很少有研究从潜在医学研究参与者的角度探讨可信度的概念或可信度的决定因素。目的本文描述了种族和民族多样性的潜在医学研究参与者如何概念化是什么使研究人员，研究环境和研究协议似乎值得信赖。设计使用标准抽样策略，我们招募了非裔美国人，拉丁裔，和白色成年人参加在社区中心进行的焦点小组服务拉丁裔社区和在一个健康诊所，主要服务于非裔美国人社区。参与者-共57名非洲裔美国人，拉丁裔，和白色成年人的方法，我们进行了七个焦点小组，探讨的看法和研究，信任，隐私，保密和研究参与的决定因素。我们使用现象学的主题分析方法来探讨可信度的决定因素进行医学研究。结果在我们的努力，以确定影响潜在的研究参与者对医学研究的可信度的观点的因素，我们发现了三个主题：谁是值得信赖的进行医学研究？是什么影响了医学研究的可信度？什么样的机构或环境是值得信赖的进行医学研究？结论这些研究结果强调，一个人的参与研究的意愿是由他们的看法，研究人员，研究机构的可信度，以及他们所得到的潜在的研究机会的信息。值得信赖的重要和可修改的决定因素可能会促进少数群体参与研究。我们发现，研究、研究人员和研究机构都有可以做的事情来增加可信度和少数人参与研究。
Background Potential research participants, particularly those from racial and ethnic groups underrepresented in medical research, often decide to participate based on how they judge people, places, and study protocols as trustworthy. And yet, few studies have explored notions of trustworthiness or determinants of trustworthiness from the perspective of potential medical research participants. Objective This paper describes how racially and ethnically diverse potential medical research participants conceptualize what makes researchers, research settings, and research protocols seem trustworthy. Design Using a criterion sampling strategy, we recruited African American, Latinx, and White adults for participation in focus groups conducted at a community center servings the Latinx community and at a health clinic that primarily serves the African American community. Participants A total of 57 African American, Latinx, and White adults Approach We conducted seven focus groups that explored perceptions and determinants of research, trust, privacy, confidentiality, and research participation. We used a phenomenological thematic analytic approach to explore the determinants of trustworthiness to conduct medical research. Results In our effort to identify the factors that affect potential research participants' perspectives on the trustworthiness of medical research, we found three themes: Who is trustworthy to conduct medical research? What influences perceptions of trustworthiness in medical research? And what institutions or settings are trustworthy to conduct medical research? Conclusions These findings highlight that one's willingness to participate in research is driven in part by their perception of the trustworthiness of researchers, research institutions, and the information they are given about potential research opportunities. There are important and modifiable determinants of trustworthiness that may facilitate minority participation in research. We found that research, researchers, and research institutions each have things that can be done to increase trustworthiness and minority participation in research.