Community consultation in HIV prevention research: A study of community advisory boards at 6 research sites

Community consultation in HIV prevention research: A study of community advisory boards at 6 research sites
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DOI:
10.1097/00126334-200308010-00013
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发表时间:
2003-08-01
影响因子:
3.6
通讯作者:
Richards, TA
Richards, TA
中科院分区:
医学3区
文献类型:
--
作者:
Morin, SF;Maiorana, A;Richards, TA

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目的:为了更好地了解如何社区咨询委员会(CAB)可以用来提高艾滋病预防trials.Design的质量:收集的数据包括描述性和流行病学报告,人种学观察,和面对面的半结构化定性访谈67 CAB和研究团队成员。访谈被编码为主题相关的社区为基础的咨询。设置:这项研究是在6个地点的艾滋病毒预防试验网络-洛杉矶,加州;伯明翰,亚拉巴马;费城,宾夕法尼亚州;哈拉雷,津巴布韦;利马,秘鲁;和清迈,泰国。参与者:在每个研究中心的研究人员的协助下,招募了36名CAB成员和31名研究团队成员,在6个研究中心进行访谈。“广泛的社区”和“特定人群”模式都被确定为CAB代表艾滋病毒预防试验潜在参与者的战略。CAB将其视为研究团队和试验参与者之间的桥梁。CAB通过协助方案制定、招募和保留来改善预防临床试验。此外,CAB都确定和帮助解决伦理问题,在临床试验。结论:当给予时间来发展,CAB似乎是一个很好的战略,研究人员和社区之间建立合作伙伴关系,合作研究项目。这种方法有可能建立可持续的能力,以确定和解决研究中的伦理问题以及社区需求。
Objective: To better understand how community advisory boards (CABs) can be used to improve the quality of HIV prevention trials.Design: Data collected included descriptive and epidemiologic reports, ethnographic observations, and face-to-face semistructured qualitative interviews with 67 CAB and research team members. Interviews were coded for themes related to community-based consultation.Setting: The study was conducted at 6 sites of the HIV Prevention Trials Network-Los Angeles, California; Birmingham, Alabama; Philadelphia, Pennsylvania; Harare, Zimbabwe; Lima, Peru; and Chiang Mai, Thailand.Participants: Thirty-six CAB members and 31 research team members, identified with the assistance of research staff at each site, were recruited for interviews across the 6 sites.Results: Both "broad community" and "population-specific" models were identified as strategies for CABs to represent potential participants in HIV prevention trials. CABs viewed their role as a bridge between the research team and trial participants. CABs improved prevention clinical trials by assisting in protocol development, recruitment, and retention. In addition, CABs both identified and helped resolve ethical issues in clinical trials.Conclusions: When given time to develop, CABs appear to be a good strategy for building partnerships between researchers and communities for collaborative research projects. This approach has the potential to build sustainable capacity to identify and address ethical issues in research as well as community needs.